We’re grateful to Priya for sharing with us her invaluable thoughts and experiences.

As a parent, what is the kind of support you wish you would get at all times?

Priya – A right support system. One that consists of people who understand and accept the complexities of autism. And by doing so, supports our family as we bring up our child. It includes those who wouldn’t impose their views in bringing up an autistic child. The right support system is as important as finding the right therapies for our child.

What are some of the challenges you face with your closest circle of friends and family?

Priya – Autism is a complex condition. The variety of treatment methodologies tends to leave us and our immediate circle in lots of confusion. When my relatives come across or read about any latest treatment methodology or medicine, they always want us to try it out. I have had a tough time in making them understand that Pranav is not a lab rat to test any method or medicine. I wish they understood that I am spending my whole life to know the correct treatment/therapy and not to advise me based on some unproven studies and expect me to follow it up.

What sort of challenges did you face when Pranav was first diagnosed? How did you overcome those challenges?

Priya – The initial phase was the most difficult. With the minimal understanding that I had then, I was feeling rather hopeless and dark. However, I gradually started coming out of it and began thinking about the present moment. The first thing I decided was to get the best of everything for my child and promised myself that I wouldn’t compromise on the quality of services he receives just because he is on the spectrum.

I  immersed myself in studying and understanding autism. I searched for the best available services. This helped me a lot. My sleepless nights gave way to the positivity around me. The feeling that I am giving the best to my child spurred me on. This positivity started growing and things became a little easier. Building this positivity is the greatest challenge in the initial days of diagnosis. Today, I have made it a point to build this positivity into parents of every recently diagnosed child I interact with.

What sort of information did you search for and where did you find it?

Priya – Information about Autism is available in abundance. Finding the right information that can help my child is the actual task. I used to search for information on how to support him with his sensory issues, on how to teach him concepts, how to work with his behavioral issues. Personally, I don’t believe in medicines for treating autism and haven’t researched much with regards to that.

I got useful information from senior parents/professionals who had worked for many years with autistic children, just by conversing with them. Autobiography of autistics or their mothers has also helped me in getting the right kind of information.

What kind of support do you need to enable your child to be independent?

Priya – To make a child independent, all that we need is someone who understands the importance of independence. Many times, a child with autism, though skilled, gets stuck in prompts. And over the years, I have understood that giving them sufficient time to do things on their own instead of prompting immediately.

Having the patience to give them time has helped a lot. Additionally, I need a support system that understands the importance of his independence. One that can be patient to work with him (or just let him be) while he works at his own pace to build his skills.

As a mother, have you ever felt that the bulk of the responsibility was on your shoulder?

Priya – Fortunately, in my personal experience, it has not been so. At the time diagnosis I said to myself that if there is just one role I can play the best in my life, it would be that of being Pranav’s mother. And I would not regret playing all other roles inefficiently if it came to that. Making that choice helped me.

Though I am an RCI certified special educator, I am yet to take any full-time professional role/responsibility. For the first four years after completing the degree, I worked only with  Pranav. After four years, when I realized I had some free time, I opted to work as a part-time volunteer at an adult vocational center. I began supporting adult trainees to do their assigned work. This gave me satisfaction that I was using my knowledge without putting myself through much pressure.

At the very outset, I made my parents and my in-laws understand Pranav will be my only priority. I will only be able to support them during emergencies. They did find it difficult to accept this initially. Over time, they have come to terms with my decision.

I understand that this is not something everyone can afford or be able to do. But to be able to forgive ourselves about what we are not able to do or not feeling regretful about the choices we make, can go a long way to supporting our mental and emotional health. We each do the best we can for our children, in whatever way possible.

What would you like to share with parents whose child has been diagnosed with autism recently?

Priya – Life may feel uncertain today. But it is not so. As you start walking, you will see stars shining on your way. Don’t ever let go of the hope you have on your child because that is the only thing the child expects from you. Love them for what they are and one day they will give it back.

Once again, we are grateful to Priya for having shared her thoughts with us.

Sending every Mother out there our love and respect for what each one of you does for making this world a better place!

We would love to hear your thoughts on these questions. Feel free to drop us a comment. We are always listening! 🙂

Drop a comment or write to us at support@avazapp.com

How do Games Help?

Playing games helps students to learn through a process of active engagement. It also aids in learning a variety of important skills such as critical thinking skills, visualization, creativity, teamwork, and good sportsmanship. Also, while playing games, students develop a variety of connections with the content – one of the most important being positive memories of learning.

Getting children on the spectrum to learn something new would require them to stay focused for a longer period of time. This could be challenging. Introducing games might be useful to motivate them to pay attention and stay focused on the subject. While using games for building skills with AAC is effective, users have also found that it is most effective when the AAC learner is in control of the process.

So what are some of the games parents and caregivers have had the most success with?

The Animalarium

Give the child a list of animals that you have pre-programmed into the child’s AAC device. Let them choose an animal from the list. Once they pick an animal, say Elephant, you can enact an elephant and ask them to join you in the enacting.

Over time you can further develop the interaction by asking relevant questions such as, “What is the color of an elephant?”, “Is it big or small?” using respective lists already created in the device or app. Thus you can teach advanced concepts such as color and size.

Just Fooling Around!

Use this game to make learning verbs more fun and engaging!

Have a list of verbs or action words preloaded on the AAC device. Once the child chooses a word, you can act that out in the funniest way possible. You can also act like beloved characters like Mr. Bean for instance to perform the actions. This would make the activity more relatable and fun! Ask the child to join you as you fool around. In this way, the entire process of learning can be made more engaging. And the child will be happy to learn new words.

Favorites

Place two or three items in front of the child, preferably some of their favorite toys and food items. Ask them to create a sentence around each of these items. Begin by modeling simple ones like, “I like my toy car” or “I like pizza”. Ask them to follow your lead. Then ask simple follow up questions like “Do you like hot pizza or do you like it cold?” or “What are your favorite toppings?”, modeling each as you go along before you ask them to take their turn. 

Games ensure that the child is an active participant in the learning process. Make sure you keep the games light and add in a whole lot of silliness to make the learning memorable. With all games be mindful of safety and customize the activity to whatever stage of learning the child is at.

We are sure many of you would have used games to make AAC learning more engaging for the child you work with. We would love to hear more about the games and activities you use! Do share your games and activities ideas with all our readers here 🙂

Families of adults or children with special needs are subject to intense emotional and physical stress at all times. They have to work harder in order to provide the best possible medical and therapeutic support for the child. They have to fight at every stage for things most people in society take for granted.

As a community, we should enable them to feel that they are not alone. That they have external support if they so need it.

Team Avaz has put together some ways by which you can lend a hand to families with special needs members.

Be Mindful of How You Extend Your Support

The first and foremost step you should be mindful of is to understand the difference between “offering” and “forcing” any support. Your offer to help should not make the other person feel offended or helpless. Or come across as being patronized. Instead, it should make them feel loved and cared for.

Help with their Home Repairs and Chores

If you have the time, this would be the best way to do it. Offer to help the family with their household chores. Many families with special needs members find it challenging to keep up with housework and home repairs. Parents are constantly engaged with their children with disabilities. Much needed help with home repairs and chores would be appreciated.

Write a Note

Remember how happy you were when you got a “Happy Birthday” card or a “Get Well Soon” card for that matter. Letting people know that they are loved and admired is a simple yet powerful way to show you care. Write notes to tell your friends and acquaintances something positive about their children. This would mean a lot to them.

Gift Something Useful

Gifting a new toy, household item or an item of clothing is a great way to help out. It can also be something as simple as their favorite tee or a fidget cube toy for anxiety and stress relief. Better still would be to ask if there is some pressing need that they have and have been unable to afford. Work together as a community to raise some funds to fulfill that need of theirs.  

Thoughtful Gestures

Offer to finish their grocery shopping for them when you do yours. Pitch in with some babysitting so they can get some time off from time to time. Maybe gift them a foot massage on the day you can babysit. A bunch of flowers with compliments like “You are an amazing parent!” or “You are a great caregiver” can definitely bring a smile!

Such random acts to show you care makes families with special needs members feel that they have a support system that they can turn to in times of pressing need. It reassures them that they are not alone. It shows that you are willing to learn and understand more about what their life is like.

How else can one show their love and support for families with special needs members? Let us know in the comments section below! 🙂

An inclusive society is about the dignity and worth of every person. This is the backbone of ALL human rights. Though there have been some improvements in our society over the last few years, disabled people and their families still confront isolation and exclusion. They continue to be pushed to the fringes of society.

To overcome this incongruous situation, we as a society need to change our attitude, begin a shift in perspective even. An inclusive attitude and behavior enable us to overthrow prejudices and raze down barriers that we have created overages.

Inclusive Society – What is it?

A socially inclusive environment is a place where everyone is welcomed. It is one where one feels comfortable enough to realize their identity and express their feelings. Social inclusion assures that one’s opinions are honored, just like anyone else’s.

Why is an Inclusive Society important?

Social inclusion plays a crucial role in determining the health of a person. Without inclusion, people are more prone to poor mental health, loneliness, isolation, and poor self-esteem.

Social inclusion enables a more positive and healthier human experience.  

Social inclusion enables people:

• To feel a sense of belonging.
• To feel worthy of their roles in the community.
• To be an active participant of the community.
• To have peers/companions and not feel being left out.
• To build social relationships.

Some crucial ways to nurture a more inclusive society:

Here are some of the ways through which greater inclusivity can be brought about. If each one of us can stay aware of these steps and keep pushing for them wherever we are, an inclusive world would no longer remain just a dream.

Employment Opportunities for People with Disabilities

Providing equal opportunities for people with disabilities would enable in creating a more inclusive society. However, the disability community is still discriminated against at work from being refused a job or denied a final interview. This can be overcome by training the staff and creating awareness among the employers to view the person as an asset and not a liability.

Increase Disability Representation in Political Setting

People with disabilities encounter architectural, attitudinal and technological barriers when exercising their right to vote, including, no automatic door openers, narrow doorways, and inaccessible voting machines to name a few.

We need to encourage our younger generations with disabilities to become politically involved. Political parties need to encourage persons with disabilities in their cadre and eventually give them platforms to contest in elections. All this would help to create a more inclusive political setting.

Integrate Disability History in School Curriculums

Disability history needs to be integrated within the school system so that the disability community will be fully acknowledged. With the inclusion of disability history, the community can be embraced by everyone and it enables mutual respect and empathy towards each other.

Promote Social Inclusion in Schools

As a society, we have the responsibility to promote the inclusion of our differences and it should be instilled in young minds. We should celebrate our peers for their differences and it should be taught at a young age. This will result in less discrimination and more social inclusion.

Provide College Scholarships to Athletes with Disabilities

Athletes with disabilities should be scouted and receive scholarships based on their athletic abilities. People should be acknowledged for their abilities rather than their disabilities and should be encouraged to participate in more events.

Realize that People with Disabilities are Humans

The most essential change that is needed in society is to see a person with a disability as a person and realize that their disability does not define who they are and it is only a part of their life.

People with disabilities have desires, skills, talents, heartache, and emotions, just like everyone else. This should be the basis of every person’s understanding and interaction with people with disabilities. That we all share these similarities which include people with disabilities as well.

Creating an inclusive society may not happen in a year or a decade, but it is not impossible to attain. Taking the first step and moving towards creating an inclusive society will bear fruits for the coming generations. With proper training, awareness, and acceptance, an inclusive society is certainly achievable.

Do share your thoughts on this subject with us, in the comments section below. We look forward to hearing from you 🙂

Quite often, young people with disabilities need additional support with things that peers their age can do by themselves. This love and support that they receive should be given in a way that empowers them to be as independent as possible. It should be the kind that reaffirms their individuality, personal dignity, and agency. And this is where the idea of self-advocacy comes in.

What is Self-advocacy?

Self-advocacy is to feel empowered to make and express one’s life decisions and choices. It also refers to an individual’s ability to effectively communicate, convey their interests, desires, needs, and rights. Self-advocacy involves making informed decisions and taking responsibility for those decisions.

The goal of self-advocacy is for the individual to decide what they want and then developing and carrying out a plan to get it. It also means that they can seek and get help whenever they need or want it.

Why is Self-advocacy important?

Self-advocacy skills enable children to have more control over their lives and make decisions that they desire. It empowers a child to speak up for themselves and make sure they have a choice in whatever decision they want to make. Also, research has found that there is a clear link between teaching children self-advocacy skills and their ability to be happy, well-functioning adults.

Self-advocacy plays a crucial role in the development of a child, so as caregivers it is our responsibility to enable children to self-advocate!

So, how can you help children to learn to Self-advocate?

The primary step towards encouraging self-advocacy skills would be to include the child in their  Individualized Educational Plan (IEP) process.

All students must be included in the IEP process to the best of their ability. Using simple language or pictures to help them understand their strengths and areas of need goes a long way in enabling them to be an active participant in the process.

It is never too early to include children in the meetings, even if it is just for a few minutes. Have the team members speak to or discuss with the student rather than the student.

Give children the freedom to make choices

From an early age, present your child with choices. For instance, when it is time for breakfast, you can ask them what would they like to have and give them options like oatmeal or toast. This enables them to be the decision-maker and enables them to be in control of their decisions.

Let children know that they have the right to say NO. This enables them to deny the requests that are unreasonable to them.

Teach Self-advocacy skills

It is essential for a child to know about their disability and how and when to disclose their needs to others. As a caregiver, ensure that you teach them all about their condition and how to disclose them when the need arises.

It is also imperative that they are encouraged to be part of groups and communities of neurodiverse youth. Such communities give them a chance to be themselves and exchange experiences. Being a part of such a community also helps to create a strong support system in addition to creating opportunities for healing and growth in the midst of peers.

Make use of a checklist to determine what skills a child already has and the skills they need to learn. This can help them to focus on a particular skill and develop it.

Encourage children to do activities that they can do on their own as independently as possible. This will also boost their self-confidence and enable them to be more participative in learning the activity.

It is never too late to start teaching your children about self-advocacy. Self-advocacy can enable your child to have the highest quality of life possible, even when you are not present to advocate on their behalf. One important point to be mindful about is that teaching self-advocacy takes time and the support of the community but it is achievable with constant practice and hard work.

How do you think self-advocacy can be taught? What are some of the ways in which you have promoted self-advocacy skills? We would love to hear your thoughts, ideas, and stories in the comments below.

As an autistic person, I see myself as part of the disability community, the autistic community and the neurodivergent community. Most people are aware of autism and I have previously spoken at length about why we need to move beyond autism awareness. But very few have heard about the umbrella term “neurodivergent”.

“Neurodivergent” is a label adopted by many members of the disability community. It encompasses all those whose brains do not conform to societal norms. This includes people with autism, ADHD, learning disabilities (such as dyslexia), and other conditions. Neurotypical describes people whose brains are considered “standard” by society.

Building off the distinctions above is neurodiversity. Neurodiversity is the concept that all brain types, whether neurodivergent or neurotypical, are natural, valuable, and worthy. Neurodivergent brains are a reflection of the diversity of humanity, not something to be eradicated. Recognizing neurodiversity may involve changing your mindset toward autistic and disabled people but is a crucial piece in giving neurodivergent people the respect that they deserve.

Neurodiversity, as seen by its etymology of “neuro” meaning “brain”, and diversity, describes the neurological diversity present within humanity. Judy Singer, an autistic sociologist, coined the term in 1988 as a way to describe the hidden category of people who may see, feel, touch, hear, smell, and sort information in ways different than the typical expectation. Unlike many words and diagnoses used to define neurodivergent people, neurodiversity is inclusive and neutral. In its simplicity, it welcomes everyone as a whole, unbroken reflections of natural human variation.

I want to be clear that recognizing neurodiversity is not meant to minimize the very real challenges that neurodivergent people face due to their neurodivergence. Neurodivergent people can experience challenges in regard to friendships, academia, employment, living skills and other areas. I could write an article about the history of discrimination, misunderstandings, lack of proper support, and possible accommodations for each of these areas, but that is for another time. Neurodiversity, however, acknowledges that some of these problems are not inherent to the neurodivergence itself, but often rather a reflection on society’s unwillingness to accommodate for such differences.

Neurodivergent people think, learn, process, and /or interpret differently than neurotypical people, and sometimes need extra support doing so. People looking to support neurodivergent people should first check whether that person is looking for assistance in that area. Like other people with disabilities, neurodivergent people might have different goals and possibly different ways in which they aim to achieve those goals. It is important to focus on supporting the person rather than fixing them. Supporting looks like doing things for or with the person on their terms, to make life easier for them. Fixing, on the other hand, looks like modifying behavior or teaching skills that would make life easier for others or the rest of society, without consideration from the neurodivergent person. Regardless of the support a person needs, they are a human being as worthy of autonomy as anyone else. Recognizing neurodiversity means recognizing everyone’s personhood and seeking to support them in their endeavors rather than trying to fix their neurodivergence.

When neurodiversity is recognized in a space, neurodivergent people have the opportunity to be themselves. People who identify as neurodivergent often have similar experiences with not fitting in, interesting quirks, discrimination, and communication styles that transcend individual labels of autism, ADHD, learning disabilities and other related conditions. Within the neurodivergent umbrella, people bond over growing up feeling “different” than peers, making sense of confusing interactions with neurotypical people, or helping each other problem-solve and self-accommodate. The neurodivergent community is rich with ideas, history, collaboration, and creativity.

In 1999, Singer wrote, “the ‘Neurologically Different’ represent a new addition to the familiar political categories of class/gender/race and will augment the insights of the social model of disability.” Just as we ought to recognize and appreciate the diversity of people’s experiences with genders, races, and class, we too must recognize and appreciate neurodiversity as a political category in its own regard. If the first step towards autism inclusion is acceptance, then the second step is recognizing and celebrating the neurodiversity of the world.

Julian Laferrera is a senior at Mount Holyoke College where they are studying mathematics education and philosophy. As a Peer Fellow with the college’s AccessAbility Office, they mentor and support other disabled students.

Julian is deeply involved in the Autistic community. Having spent the last eight years learning ASL, including a semester away at Gallaudet University for the Deaf, they plan on getting a Masters in Deaf Education soon.

Guest Post by Priya Sasi Murali

When Pranav was diagnosed with Pervasive Developmental Disorder (PDD-NOS) as an 18-month-old baby, his father and I felt lost and disheartened. But as the days passed, we were able to gather our courage. We began working through the emotional turmoil bit by bit. And it was around this time that we began our search for answers to how we could support Pranav to live his best life.

The Beginning of our Journey

Initially, we were overwhelmed by the range of therapies and interventions, especially since not many of them seemed to be scientifically proven. As my search for more proven and sophisticated approaches continued, I came across a diploma course in Special Education with a focus on Autism Spectrum Disorders (ASD) from a reputed school. I immediately enrolled in the course. This gave me a better understanding of ASD. Learning about the various conditions, characteristics, behaviors and proven teaching methodologies for children on the spectrum helped me better formulate ways in which I could support my son.

As Pranav grew older, so did my desire to empower my son. I continued to educate myself. I used to read a lot of books – from autobiographies of high functioning autistics to parent experiences, research articles, blogs, and other related writings. My thirst for knowledge and my will to empower my son led me to attend a lot of conferences. I interacted with senior professionals and experts in the field and gained many valuable insights.

My Goals

When Pranav was about 9-years old, I formulated two primary goals for us. One for Pranav and one for myself.

• For Pranav, the goal was to make him independent, functionally and financially.
• For me, it was to support Pranav as he worked to develop his personality and individuality.

With these goals in mind, we began working on a few areas we felt were essential to achieving them.

Functional Independence

To work towards independent living, we started with functional independence. We realized that his sensory issues are a huge hindrance for his Activities of Daily Living (ADL) independence. He was highly sensitive to some simple activities like washing his face, cutting his nails, a haircut among others. The loud sounds from a pressure cooker and blender also bothered him. We worked on normalizing these sensitive activities through constant modeling. Today Pranav has come a long way from where he started. He now helps me with chopping vegetables and watches calmly as I make chutney (a spicy Indian relish that requires the use of blender). At times he even operates the blender on his own with my presence.

Financial Independence

The next area of focus is financial independence. When Pranav was 10, I requested his school to move him to the vocational stream. I believe that this will enable Pranav to learn the skill set required for him to be financially independent. He is now getting trained in 3 or 4 vocational skills in his school and I make sure to work closely with his teachers in building those skills.

Safety

Safety is another area that is important while learning to be independent.. We started teaching him about household safety to begin with. Initially, we taught him not to touch anything that was hot. Steam was, therefore, a useful indicator for us. Pranav learned that if steam is coming out of any object/item, he should not touch it. Next, we moved to handle stoves. After a lot of hard-work and modeling, Pranav can now safely operate the stove by himself.  

Road safety is something we practice regularly. I personally believe that every child should be taught road safety measures. Every day, we go for a walk for about half an hour and I never hold his hands. He walks straight on the footpath. Pranav has also learnt to cross manual signals and he is learning to cross automated signals as well. He is used to traveling in all sorts of public transport with an adult and loves it!

Working to Develop Pranav’s Personality

I want Pranav to be a self-regulated individual and to achieve this, I am teaching him to take care of his emotions. I have enabled him to understand, over time, to take NO for an answer. Especially if they involve his favorite items. This has enabled him to adjust to every situation he encounters. For instance, when our relatives visit us, he has to sleep in our room and has to give up his bed. Through regular work, we are now at a place where such requests do not trigger him.

Also, as I was teaching him to identify and make do with his emotions, I realized music helped him. That it was serving as a coping mechanism for him to regulate himself. Now he goes for regular music therapy sessions in a reputed musical team which works for children with special needs.

Pranav’s Rights

As Pranav works towards leading an independent life, we are working to create an awareness in him that he should be proud of who he is. That he has a whole community of people he can take support from. And that he, unfortunately, would have to work harder than others to secure his rights.

To this end, we make it a point to participate in all awareness drives and activities. We want him to bring to light with all pride and dignity that he is autistic. As a mother and as a person committed to social justice, I’m determined to enable Pranav to fight for his rights and create an inclusive society.

This is What Independence Looks Like

This year, on World Autism Acceptance Day, Pranav and I went shopping at Big Bazaar. He had his shopping list with him on Avaz. I had helped him create the list with options so that he could choose between two items of his choice. He was able to pick the items of his choice and get them billed. He also interacted with a couple of people around the store! Through the whole experience, Pranav remained calm and he thoroughly enjoyed himself. Truly, given a supportive environment and the right tools, children with autism can happily socialize and interact.

Did I mention that this was his first-ever shopping experience?

I  took immense pride in what Pranav was able to achieve that day.  It was an indication to me that we are moving in the right direction. That I am bringing up my child in a  way that empowers him. I also feel blessed and pray to God to guide me in bringing him up in a way that he empowers himself as well as his community!

Priya is a qualified Special Educator specializing in Autism Spectrum Disorder (ASD). She lives with her family in Chennai, India. Her son Pranav is 14. He is non-verbal and has been diagnosed with a pervasive developmental disorder (PDD-NOS) which is one of the four Autism Spectrum Disorders.

We are grateful to Priya for having shared her story with us. Her journey would give some of us new ideas to try with our own children while opening the eyes of some others to the possibilities. 

We would love to hear your thoughts and the kind of journey you are on personally or with someone you care for! If you or anyone in your circle is interested in sharing their story, do drop us a line! We’re listening! 🙂

Drop a comment or write to us at support@avazapp.com

“Awareness is easy but acceptance comes from a place of understanding.”

April has always been very close to my heart. With the entire month being observed as Autism Acceptance Month, it brings to the fore the sheer diversity and vibrancy that represents the autism community. A time to celebrate the incredible strides made by the community and their allies towards creating an equitable and just society. Not only for themselves, but also for those will come after them. 

It also brings into sharper focus some other things. For instance, the fact that the important conversations we have during this month must continue all through the year. That these must translate to commitment and action on the part of every member of society.

We, at Avaz, take this opportunity to reiterate our commitment to continuously support the autism community, as well as the larger community of people with disabilities, in all their endeavors through our work and beliefs.  

At the core of all our work at Avaz is the belief that whatever we create should enable equal opportunities. We commit ourselves to keep creating products that enable anyone on the autism spectrum to be able to unleash their true potential.

Through our work, we will constantly strive to help break down barriers that arise from society’s misplaced notions about disability, and what equality and accessibility really mean.

All the technology that we have been able to create has been possible only because our users and their families tell us what they want. And we have never stopped listening.

I would like to reiterate our commitment to constantly work with the autism community and the larger community of people with disabilities. And do so to create products that work with them towards realizing their dreams.

I take this opportunity to invite you to join us, partner or collaborate with us. To create solutions. To create acceptance. To create change.

The future that we envision is one of acceptance and inclusion. It is about creating a world where people with disabilities can participate in everything. Where equal opportunities are the norm.

Thank you for letting us journey with you thus far. We look forward to travel further with you in your work towards creating an accepting and inclusive society for all.

In solidarity,

Narayanan

CEO, Avaz

P.S. On account of Autism Acceptance Month, Avaz and free speech are now available at a 50% discount. Click here to know more.

In our previous blog post, we spoke about Mindful Parenting – a technique that melds the practice of mindfulness with approaches to parenting. We discussed how this can enable parents to manage their stress and attend to their wards in a more effective way. If you haven’t had a chance to have a look at the various techniques of mindful parenting shared in that blog, you can take a quick peek here: Mindful Parenting.

Mindfulness is for everyone, regardless of age. Children, especially those on the autism spectrum, can immensely benefit from making the practice a part of their lives. In this week’s blog, we will be discussing mindfulness techniques that you can teach your kids. Mindfulness can enable your child to recognize their emotional responses to stimuli. Using this knowledge, they can over time, learn to respond more effectively to situations and stimuli.

How Mindfulness and Autism are Connected?

Many children on the spectrum struggle with three critical areas: motor skills, sensory regulation, and socialization. They have difficulties in gaining control over the relationship between their mind and body. This is where mindfulness can help. Mindfulness lays the foundation for the skills required for building awareness of the body. Practicing mindfulness gradually enables children to take control of their body. This, in turn, leads to better sensory regulation and a decrease in social anxiety.

Benefits of Mindfulness – For Children

When done properly, mindfulness has several benefits over time, including:

• A better awareness of what is happening inside them, emotionally and physically as well as the happenings around them.
• The ability to identify and control their own emotions.
• Tools to handle their anxiety by helping them to pause, breathe and anchor themselves to calm their mind and body.
• Improving attentiveness while learning.

How to teach Mindfulness to Children on the Spectrum?

There are many ways by which a child can learn to be mindful. The following ideas can be used as a foundation to come up with more customized techniques that suit your child the best.

Here are some simple ways in which you can teach your child to practice mindfulness on a regular basis:

Breathing Exercises: Come up with a breathing exercise/game for your child. For instance, ask your child to cuddle their favorite toy to their tummy and see if they can make it rise slowly up and down using their breath. This enables them to easily concentrate on their breath.  

Another instance would be to use a balloon. Hand over a balloon to your child and ask them to blow it up slowly. As the balloon expands, invite them to turn their attention to the balloon. Once they are done, you can slowly release the air from the balloon and call their attention to the balloon’s contraction. This is a great way to teach children to concentrate. You can build upon this technique and come up with similar or better methods!

Bell Listening Exercise: Ring a bell. It could be a physical one or one from an app. Ask your child to close their eyes and listen to the vibration of the bell. As the sound of the bell declines, invite them to slowly shift their attention to any other sounds they hear for about a minute. This is a simple yet effective exercise that shifts your child’s attention to the present moment.

Soles of the Feet: This technique was developed by researchers to manage angst, anger, and aggression. When your child is faced with emotionally stimulating situations, you can teach them to redirect their attention and awareness to a neutral part of the body such as the soles of their feet. This technique helps calm and clear their mind during stressful and stimulating situations.

Calm-down Jars: For this activity, fill a clear jar halfway with water. Top it off with some glycerin or baby oil. Finally, add some glitter to the jar and screw the lid on tight. You can also glue the lid on to prevent spills. If you have a snow globe handy, that would work perfectly as well.

When your child is going through a stressful experience, ask them to shake up the jar and watch as the glitter settles after the swirling chaos within it. This technique allows them to relate their internal state of mind to a visual object. As the external calms down, they too will be able to calm themselves down effectively.

With regular practice, children on the spectrum can benefit greatly from mindfulness and can take control of their body and mind coordination. Also, mindfulness has several benefits and helps them to approach an unexpected or stimulating environment with a calm mindset. Mindfulness, when practiced regularly, can enable children to be more efficient in their activities.

Are you practicing any mindfulness techniques already? Share your thoughts with other readers in the comments section below. 🙂

Parenting can get pretty stressful and challenging. Yet, as many parents would vouch, it is one of the most satisfying and rewarding experiences in life!

Parenting a child with disabilities comes with its own unique set of challenges. Parents of children with autism and other related disorders have been known to experience high levels of stress, depression, and anxiety. Parental stress is a serious issue, but it is often ignored. Self-care gets neglected and parents often end up with severe burnout. This might lead to a situation where parents may no longer be in a position to provide their wards with care and support to the best of their abilities.  

Key to be able to manage this stress is, self-care. And one of the most impactful approaches to self-care is through mindfulness. In today’s blog post, we will discuss what mindfulness is, its benefits and a few simple mindfulness practices that one can integrate into their daily lives.  

Mindfulness – What is it?

Mindfulness, in simple terms, means paying attention to or being in the moment, without passing any judgment.

What are the benefits of mindfulness?

Consider a situation where your child is having a meltdown when you are at the park or in a store. The most ideal response would be to first, realize and accept your anxiety and frustration at the situation. Next, you would want to focus on how to respond to their meltdown, without letting your thoughts affect your decision-making. This is one instance of mindful parenting

Practising mindfulness, can over time, enable one to approach any issue in a calmer, more systematic manner. It can help you to deal with tough times with greater strength and resilience. The ability to cope with any given situation improves significantly.

Mindfulness also promotes the ability of greater acceptance. Practising acceptance reduces stress. It also helps in better focusing on the present rather than worrying about the distant future.

In essence, mindfulness empowers one to look at oneself and life situations with kindness, love, and forgiveness. When the same mindfulness permeates all aspects of life and becomes a part of the way one approaches parenting, it is mindful parenting.

How to Practice Mindfulness?

Mindfulness is not a destination, it is a journey. It needs to be built slowly and steadily. And it will take time. Here are some simple ways in which one can start inculcating mindfulness into their lives:

Mindful Walks:

The best place to begin mindfulness practice is by simply taking a walk! Put aside a few minutes every day to take a short walk. On the walk, will yourself to notice things around you and the act of your walk itself. While you are doing this, try to concentrate on the smallest details. Things that you would normally miss while being lost in your own thoughts.

In the beginning, it might seem rather tedious. Over time though, this will cease to seem like a task. You may even come to look forward to this walk! Slowly, try replicating the same during the routine tasks you undertake on a daily basis – be it brushing, bathing, cooking or driving.

Such conscious intake of your surroundings enables you to clear your mind of the constant swirl of thoughts and worries in there. As you master this technique, you can try observing your thoughts with similar concentration.

Bonus: This can be a great relaxation technique as well!

Breathing Exercises:

Simple breathing exercises can help with developing mindfulness. The basic exercise that you can start with is just the observation of your breath. Time yourself as you do this. Start at 20 seconds and slowly move upwards. There are many guided meditation apps that you can use to support this practice. These apps will give you guidance as well as tips to improve your practice.

Mindful Bedtimes:

During bedtime, try to include an app-guided meditation a couple of times a week. Body scanning technique is a great way to start practising mindfulness. This promotes great sleep, which is an added bonus!

With everyday practice, mindfulness can immensely help parents be more effective with their children. It also enables one to look at the bigger picture and not get caught up in the smaller things.. Mindfulness has several benefits and has absolutely no side effects. It can provide parents with useful coping techniques and help one to be more efficient in their daily activities.

Do you practice mindfulness? What are the techniques you use? Share your thoughts on this subject with us, in the comments section below. We look forward to hearing from you 🙂

Human beings are social creatures. Social Skills, therefore, are considered to be one of the most important aspects of human life. These skills are deemed an integral part of functioning in society. One begins to pick up these skills from a very young age. This, in turn, prepares one for a lifetime of healthier interactions while enabling the capacity to make meaningful connections with others.

However, the very nature of social skills is subjective. The capacity to pick up these skills at a level that is socially acceptable varies from person to person. Given this subjectiveness, persons with disabilities may find it challenging to understand and demonstrate these skills.  

What are some of the ways in which such skills can be developed in a manner that is reaffirming? Team Avaz has been researching this and we have put together some proven ideas that you can try out for yourself.  

Modeling

The importance of modeling, in every aspect of life, is worth stressing on repeatedly. There is no doubt that it is the single most effective technique to teach any kind of skill to your child. As a caregiver, you can help model different kinds of social interactions by enacting them to or with your child. Enacting is a great way to familiarise children to a new environment and it enables them to be prepared for a new or unexpected interaction.

Pick one scenario to enact and model your child until they are able to interact with ease.

Self-Modeling

While modeling involves an active role by the caregiver, self-modeling is where the caregiver takes the back seat. One way of self-modeling would be to record the student while they perform or practice the social skill.

Begin this process by first breaking down the interaction to smaller segments. Have your child perform one piece and record it using your phone. You can also prompt or model when needed.

Finally, combine all the pieces together to create a seamless recording. Play this video back to the child. As they watch themselves performing the task from start to finish, they will understand the concept better.

The video can also be used as a tool for reiteration.  Backed with practice, this technique will support the child’s effort to generalize any social skill that they are looking to pick up.

Cartoon Strip Social Interaction

Cartoon strip conversation is a technique innovated by Carol Gray. It is a way to let children(or any learner) fill their thoughts in speech bubbles before they role-play a conversation. Cartoon Strip Social Interactions support all levels of challenge and help with improving the fluency of social skills. Research has shown that cartoon strip interaction is an effective way to enable students to improve social interaction skills.

The comic strip below can be used as a guide. There are many such resources available on the internet for free. Use one such comic and guide your child to fill in the bubbles in the boxes. For non-verbal children, you can use the same technique hand in hand with their AAC technology of choice. Prompt them to tap out responses on their AAC device.

With this method, you can introduce a whole range of interactions including greetings, requests, initiation of social interactions, and negotiations to your child.

For instance, you can practice Greetings like “Good Morning” or “Hi, I’m Johnny”.

Another example would be a Request like “Can you please help me?”.

Role-Playing

The practice is an essential tool for building social skills. Role-playing offers a great way for a child to practice a social skill with another person in a controlled and safe environment. By exposure to other people’s responses, the child will get to grasp the interaction from different perspectives while broadening the scope of their understanding of the skill.

The comprehension and demonstration of emotions, expressions, and interactions can seem quite daunting for a child with a disability. But patient guidance and support will enable them to develop such skills over time. Coupled with practice in a safe and affirming environment, children can acquire the skills to identify emotions as well as their causes and effects in various scenarios.  This will enable them to build healthier and more meaningful relationships with their friends and family.

What are some of the ways in which you have tried enabling social skill learning?  We invite you to share your ideas with us and our readers in the comments section below! 🙂

References:

https://www.thoughtco.com/cartoon-strip-social-interactions-3110699

https://www.thoughtco.com/teaching-social-skills-3110705

It is a known fact that children are excluded from many school settings because of disability, race, language, religion, gender, etc. But every child has the right to be educated and thrive in an environment that is inclusive irrespective of the differences. Nowadays, parents are more inclined towards inclusive education, but there isn’t much awareness of this topic.

Keeping this in mind, we are going to try and demystify inclusive education and its importance.

Inclusive Education – What is it?

Education is deemed to be inclusive when students from diverse backgrounds learn side by side in the same classroom. Students with different physical and learning abilities are placed in age-appropriate general education classrooms. They participate in field trips and after-school activities together and attend the same sports meets and plays.

It is the teachers and the school administration who recognize that children with disabilities have equal capacities to learn and perform just like their peers without disabilities. To this end, they provide adequate support, resources, and infrastructure to facilitate their education.

Why Inclusive Education is Important?

Inclusive education is about appreciating each child’s differences. It involves taking cognizance of each child’s unique set of strengths and limitations. Inclusive education enables children to understand and live in harmony in a world filled with people different from themselves. An inclusive school is the perfect training ground for real life as the dynamics of the school imparts children with life lessons, values, and morals.

Some important values that inclusive education imparts are:

Greater Sensitivity

Children who grow up in inclusive education dynamics become more sensitive by learning side-by-side with their peers with disabilities. They understand how words can affect a person. They get to practice patience and develop empathy. This also inculcates strong bonds of friendship among the children and helps them learn social skills.

Better Understanding of Strengths and Weaknesses

Children in inclusive schools learn that everyone has strengths and weaknesses. This gives all the children a chance to learn to appreciate such differences. Children with disabilities, especially, are able to develop a positive perception of themselves from the get-go. All the children in such a setting, learn the importance of collaboration to accomplish something. As children of different abilities learn and grow together, so do their values of respect and acceptance.

Learning Together

The primary aim of inclusive education is to enable children to learn and equip themselves with skill-sets that fits their interests. Such an approach benefit everyone. Children learn at their own pace and style within a nurturing and supportive environment.

Creation of an Inclusive Society

Introducing inclusive education into the classroom leads to the acceptance of children with disabilities, thereby enabling them to lead their lives in a more inclusive society. When children are exposed to inclusive education, it imparts the values, skills, and knowledge to include others who are different from them. Children start to perceive the differences in a positive way. In the long run, these future adults will be instrumental in ensuring that equal opportunities are made available to ALL.

Inclusive education is of great importance and schools should not exclude students with disabilities. Children with disabilities should be provided with quality education just like children without disabilities.

With continuous exposure, inclusive education not only enables children but also parents and teachers. Also, inclusive education meets the requirements of every child in the system thereby creating a bright future for this approach. With proper training and support, schools can implement inclusive education with ease and success.  

Share your thoughts on this subject with us, in the comments section below. We look forward to hearing from you 🙂

Love & support from family and friends can make all the difference in our lives. This is especially true for those who find processing even day-to-day activities overwhelming.

To care better for your loved ones with autism, we have compiled some tried and tested tips that can help you to show even more love in your caregiving role. This way, you can shower your love not only on Valentine’s Day but also all year round 🙂

Express thoughts clearly

It is a very human tendency to drop subtle hints or convey our thoughts in a not-so-straightforward way. For people with autism, the task of reading between the lines is a challenge. So, it is always best to communicate thoughts and opinions in a clear and straightforward manner with them.

Being transparent and upfront helps them stay focused on the immediate present in addition to giving them a clear idea of what was communicated.

Say NO to surprises

When a change is presented in a rational, gradual and logical manner, it is well-received by people on the spectrum.

On the other hand, they would find coping with sudden changes in routine difficult. They do best when they know what to expect. Even when a “happy” surprise party is thrown, they would need time to thoroughly consider and walk through the events unfolding in front of them.

A change of plans brings with it an immediate sense of uncertainty. This, in turn, could lead to confusion and discomfort. Hence make all plans keeping this in mind.

Create opportunities for activities to look forward to

The anticipation of an enjoyable experience (things they are already familiar with) keeps them going throughout the day. The thoughts of an upcoming happy time would help counterbalance anxiety and panic-driven situations.

Simple things such as their favorite meal, lunch with a dear friend, or a day to sleep in and rest – looking forward to things like these keep them going. So ensure that you create such enjoyable events for your loved ones on the spectrum.

Have things in order

Having things organized in a systematic and consistent manner is essential in providing comfort. Make sure the immediate space – such as rooms, paperwork, school bag, wardrobe and such are organized in the same fashion every day.

While this might be a bit tiresome for you, this also means less anxiety brought on by challenges with object permanence that your loved ones on the spectrum face. Simple things like knowing what to expect when they enter a room or when they open the dresser drawer prevents anxiety. Not having to guess and process the excess of information before, during, and after an encounter goes a long way.

Give them ample time to process

One of the most important things you can do to support your loved ones is to provide them with adequate time to process information at any given point of time. People on the spectrum need time to process their own emotions and expectations. Without the time to process the events of their life, they might not function to their fullest. So it is essential to give them ample time and space to let them understand the unfoldings of both internal and external events.

Give them unconditional love and acceptance

People on the spectrum need to be understood, accepted and loved unconditionally! When they are forced to do things they don’t want, it might lead to meltdowns. Instead, provide them with space to follow their pursuits and special interests. Let them have their “Me” time, and make sure that you do not disturb them or push them to do things that you may think is best for them.

This Valentine’s Day let us show our love and support to the adults and children with autism and make them feel loved even more! The above-mentioned ideas are just one way of doing that. We hope that you find these tips useful and implementable for your loved ones. Together, let us make sure that Everyone is being Loved & Cared for!

Do you have any ideas that you have used with your loved ones? Feel free to share with us in the comments section below!

At 21, Ummul Khair decided that she no longer wanted to stay at home. She picked up the phone and dialed an inquiry number. But it was not an easy task to find Vidya Sagar (formerly – The Spastics Society of India). Many calls later, she boarded a train to Chennai. This is the journey that changed her life and made her the person she is today!

Almost two decades later, Ummul is now the Coordinator of the Disability Legislation Unit (DLU) at Vidya Sagar. She works on advocacy for people with disabilities. A student of Sociology and a graduate from the Tamil Nadu Dr. Ambedkar Law College, Ummul now eagerly awaits her enrollment in the Bar Council. Ummul is an independent, outspoken, and knowledgeable woman who aims to make our community more accessible, one audit at a time.

Team Avaz had the privilege to interview Ummul and get to know more about her, her journey and her work. So sit back and get inspired by the life of this woman of substance!

Team Avaz (TA): Who is Ummul Khair? What is she like as a person?

Ummul: I have a disability. Yes! But I’m not a disabled person. I have my strengths and weakness and I would like others to accept my abilities. Accept me for who I am and accept me as a Person with Disability.

I used to be an innocent child and always depended on others but now I am able to help others and that makes me happy!

TA: Tell us a bit about your childhood? Can you please share some of your fondest memories?

Ummul: As a child, I was always on the bed. My mother used to carry me to every place. I didn’t own a wheelchair. So, I never had the chance to leave my home on my own. My parents worried too much because of my disability and never left my side.

On the bright side, I was favored by my parents more than my brother. Whatever I wished for, was immediately done! But I secretly yearned for education; to be independent and to help and care for others!

I don’t remember most of my childhood, but I do know that I loved eating curd and my favorite candy, Gems. I always looked forward to playing with my cousin!

TA: Starting your education at 21 needs lots of courage. Can you please tell us what motivated you?

Ummul: I wanted to know what the world was like. I wanted to meet people and make friends. Since I spent my childhood inside my home, I never knew how to handle any situation nor did I know how to interact with people. I wanted to know what rights I had as a woman and as a woman with a disability.

I couldn’t go to school because my parents were overprotective. It did not help that people around me believed education was of no use to me. For many years I saw my cousins reading, but never had the opportunity to read those books. I remember reading the subtitles while watching movies and soap operas.

There was this particular soap where the protagonist was a woman with a disability. It portrayed her journey and how she overcomes the challenges. Watching it day after day, kindled my spirit and I wanted to become like her! I wanted to break the stereotype.

“To express my thoughts, come out of my boundaries, and break the stereotype, I wanted to pursue my education.”

TA: Talking about education, you did Sociology and now you have done Law. Who or what inspired you to choose this path?

Ummul: Do you agree that Rights come by birth? I didn’t know my rights for a long time. I thought it was rude to refuse a favor(though I never asked for it). But now, I don’t accept any favor unless I have requested it.

I believe in human rights and that’s what I fight for. Not just for persons with disability but for everyone! This is the reason behind me taking up Law – because no one should be denied their rights.

Helen Keller has been a huge inspiration as well. Her writings have had a great influence on me.

TA: What, according to you, has been the biggest challenge life has thrown at you so far? And how did you overcome it?

Ummul: I used to speak only in Hindi or Urdu. Hence learning a new language, English,  and improving my proficiency in it was a challenge. Also, at times, I forget. Imagine being a forgetful lawyer! That’s my biggest challenge. (laughs)

On a more serious note, accessibility is another challenge. Not only for me, but also for every person with disabilities.

The attitudinal barrier is another predominant challenge that needs to be addressed immediately. When I was at Madras High Court for an access audit, the security person stopped me from entering a particular room as it was not accessible. But that was exactly the reason why I was there!

People take one look at me and think that I am struggling in a wheelchair.

“People fail to see ME, as the disability is more visible to them!”

TA: You along with the Disability Rights Alliance played a primary role in making the Besant Nagar and Marina beaches in Chennai accessible for wheelchair bound folks – Can you tell us more about this effort?

Ummul: Pushing a wheelchair on the sand is very hard. I used to sit near the footpath and a volunteer would have to stay back for me – every time I wanted to visit the beach! These experiences sparked the idea to work towards making beaches accessible for people with disabilities.

I researched various accessibility projects around the world. Then I started writing petitions to all the concerned authorities. But it was really hard to get their attention as I was a lone student. This is when I came to know about the Disability Rights Alliance (DRA). I collaborated with them and worked with Chennai Corporation as well. After lots of research, follow-ups, and processes we were able to celebrate World Disability Day at the beach with our students.

TA: What kind of changes would you like to see in our society? What is your vision of an inclusive society?

Ummul: Equal opportunities for people with disabilities. Every place should be made accessible. When I was in the US representing India for a one-month student leadership program, everything was accessible to me. I was able to go wherever I wanted to and that is something we should work towards.

My idea of an ideal inclusive society is where people with disabilities not only seek help but are also able to contribute to society and give back to those in need.

TA: That’s really a great vision! Thank you for sharing your thoughts with us. Before we close, is there any message you would like to share with our readers?

Ummul: Most certainly!

“Don’t ignore us; talk to us and not behind us.

Remember! Everyone is interdependent and no one is completely independent.

Everyone needs support, everyone needs suggestions. So value each other.

Give us the opportunities to show what we are capable of. ”

Together, let us strive to Make Every Voice Heard!

Siblings are critically important not only in childhood but also over the course of an individual’s lifetime. They form a child’s first peer group, enable the development of social skills and provide valuable life experiences. Siblings of children with disabilities take up the role of secondary caregivers and provide emotional support and physical care to them.

Such young people who carry out or support caregiving duties are recognized as Young Carers. To raise awareness of the challenges faced by young people, Young Carers Awareness Day is observed around the world on January 31.

This year’s theme focuses on the Mental Health of young carers. Most young carers have more responsibilities than other young people. As a result, they experience more stress than their peers, some of which they might not be able to handle by themselves.

Here are some ideas that you can try out to ensure that young carers receive all the support they need.

HAVE AN HONEST TALK WITH YOUR CHILDREN

Communication is vital to build and develop any relationship. Therefore, the importance of communication should not be underestimated when it comes to young carers. Talk to your children about mental health and help them understand how important their mental health is. Ask them if they are feeling stressful or depressed. Discuss with them what you can do as a family to help them feel better.

Tell your children that you are proud of them for taking up responsibility and supporting their sibling. Talk to them about specific incidents which made you feel this way.

BREAKS FROM RESPONSIBILITIES

Most young carers are children who grow up faster than their peers. They try and understand the hardships in life at a tender age. But these hardships should not be a reason to miss out on a happy childhood. To create a positive impact on mental health,  regular breaks should be provided. If family outings are not possible, let them have fun with their friends.

Most importantly, give them breaks from responsibilities when they are tired or feeling low. Let them know that they are also children who need to enjoy being a child.

SUPPORT THEIR STUDIES

Young carers, because of their caring responsibilities, might need support in school to keep up with their peers. Talk to their teachers about the caregiving responsibilities and request them to provide extra help whenever the child needs it. As a parent, you could help your child with assignments and homework. If they had to miss school for a day, ensure that the classes are covered and the concepts are made clear.

HELP THEM SOCIALIZE

As a young carer, your child may miss out on opportunities to play and spend time with friends and classmates. This might lead to them feeling isolated, and they might find it hard to make friends. Hence it is important to find other young carers with whom your child can relate and talk to.

Meeting other young carers can be an excellent way for your child to make new friends, share their experiences, rebuild their self-esteem, and have the social opportunities that children their age should have.  

This Young Carers Awareness Day, let us make sure to recognize the efforts of our young carers who help to care for their siblings and parents with disabilities. Spending a little more time with the young carers and supporting their needs would go a long way in promoting their well-being.

The above-mentioned ideas might help you to strengthen the bond with your children and help you to support them in better ways. Together, let us make sure that Every Voice is being Heard!

Do you have any ideas that you have used with your young carers? Let us know in the comments section below!

Making a positive difference in the society we live in is something we all aspire to in various measures. That said, we see a lot of change makers in our day-to-day life but hardly have any time to acknowledge their efforts in making this world a better place. One such group of people who toil day and night without much appreciation are the programmers or developers behind many of the apps we use all day.

January 07 and September 13 are observed as International Programmers Day in different parts of the world. We are dedicating today’s post to give a huge shout out to our amazing team of programmers, here at Avaz. 

“Being a programmer requires a lot of patience and everlasting love for coding.”, says Balaji, Senior Software Developer at Avaz.  

The Development Team or the Dev Team as we call them, are the ones responsible for making Avaz what it is. They are the ones who work with the Product Team to turn user feedback and expert recommendations into features on the Avaz app. From understanding the requirements of the users, ideation of the various elements involved, researching the best approaches, designing the components from scratch, implementing the features to testing the usability of these features and finding issues in them, the Dev Team does it all.

“I have always wanted to create a product that serves the community. And Avaz gave me the opportunity to do it.”, says Abu, Senior Software Developer at Avaz.

Creating the best possible app for the user has always been the primary goal of the Avaz Dev team. The will to serve the community and the ability to deliver the best to our customers has helped them stay motivated throughout this journey. There have been times where they have had to stay up all night or forgo vacations to ensure that some customer requirements go out urgently. But they do all this without complaining. Because as Narayanan, our CEO puts it, “There is a lot of joy in seeing something that you have coded making a huge, real-time difference to a child’s life!”

All of us here at Avaz are very proud of our Dev Team. We take this opportunity to thank each one of our developers for all the hard work and commitment they have put in over the years.  

Here’s to Abu, Balaji, Kavitha, Abdul, Narayanan and all those who worked on Avaz before them, for their unceasing efforts to Making Every Voice Heard!

PS – Any day is a good day to express your gratitude. So take this opportunity to thank those who have been supportive of your journey and remind them that they are just AWESOME for being the way they are! 🙂

Siblings are our first friends, and at times, our closest friends. Researchers have found that siblings heavily influence each other and the type of person they eventually grow into. And in the lives of children with special needs, siblings have an especially important role to play.  

Involving siblings is a great way to enable children with specialized needs to experience a dynamic and supportive environment. As they build their communication, it helps the siblings to build a deeper relationship with each other. Many a time siblings of children with special needs end up feeling left out because of all the focus and energy being given to the latter. This manner of involving them can be one of the ways to enable them to overcome that feeling.  

Here are some tried and tested ways by which siblings can engage by using AAC –

Collecting Frequently-used Messages:

Ask the sibling to help you brainstorm messages that their brother or sister might want or need to communicate. This can make your work simpler as siblings are closer in age and know things about each other that adults might miss!

Recording Voice Outputs:

Recording voice messages is a fun way to engage your children. Listening to a familiar voice, makes your child want to use the AAC device more. When a sibling records a message using AAC, it develops compassion and a sense of belonging in your children.

Guiding the Siblings:

While most siblings might not love being bossed around, they can engage in games that involves giving directions. Such games teach critical thinking and encourage self-discovery. And games are great ways of coming together and having fun! By using a sequence of messages on their device that you can load beforehand, the children can take turns to play an inclusive version of games like “Simon Says” and so on.  This will give the child a sense of control while letting the siblings be actively involved in the game.

Bedtime Stories:

You can get the help of your child to record a sequence of messages and add relevant images of a bedtime story. Later, the child can “read” the story to their sibling by selecting the pictures in a sequential manner.

Lullabies:

Just like the bedtime stories, you can record some of your child’s (who uses the AAC device) favorite lullabies on the AAC device. During bedtime, the sibling can select a lullaby and sing along as the device sings the song. This is a great way to improve the bonding between the siblings.

With little preparation and support from your end, you will be amazed how incredibly passionate siblings are about helping their brother or sister to communicate more effectively. These activities will also help bring out the caregiving qualities of your children. AAC and AT are very helpful tools for increasing children’s opportunities to engage meaningfully with their brothers and sisters. And Avaz is one such tool striving towards Making Every Voice Heard!

Do share other methods you use to enable communication and bonding between siblings with the help of AAC or AT!

Each New Year brings with it immense promise. A promise of fresh ideas and a renewed energy to bring those to fruition.  And 2019 is no different. After a deeply meaningful 2018, all of us here at Team Avaz are extremely excited about the coming year. 

What are some of the things that will have the greatest meaning for our users – this is the question we asked ourselves as we planned for 2019. After much thought, here are some of the things we have decided to focus on, in this brand new year.

PRACTICAL INSIGHTS 

One of the biggest focus areas for us in the coming year would be to provide you with the best resources, information and research that you can use to equip yourself to become even better at what you do. Whether you are a parent, a caregiver, an educator or a therapist, we will strive to bring you the most relevant and useful content through the year. We would love to hear from you about what it is that you would like to know more about. Do tell us that in the comments section below and we will get cracking to bring you just that!

CREATING BETTER COMMUNICATION PARTNERS

Continuing in a similar breath, but with a more specific objective, this year we want to work with you to enable each one of us (ourselves included!) to become better communication partners. To do this we would need to create many communication opportunities. Additionally, use strategies that would enable those who we work with to communicate better and do so at their own pace. To this effect we are looking at –

• Creating online and offline opportunities to interact and learn from each other.
• Conducting workshops, training webinars and demonstrations to create greater understanding of AAC in general and Avaz in particular.  
• Creating tried and tested pool of resources and content on effective communication partnering strategies.

We believe that such opportunities for all of us to engage and share knowledge will go a long way in making all of us better communication partners for the people we work with.

PRODUCT IMPROVEMENTS

The year gone by saw some big ticket improvements to Avaz. And this we are hoping to top that and are raring to go to make Avaz even better. We are already working on adding many new languages. In addition, expect to see some really powerful new features that a lot of you have been requesting for. And of course, we will keep working to iron out the creases and tweak the existing features to give you a better Avaz experience, every time!

Stay tuned to this space for news on updates and new features ☺

NEW PRODUCTS

At Avaz, at the core of everything we do, is the belief that technology can empower any individual with special needs. To that effect, we have been working on many new product concepts and prototypes. This year we expect to release at least two new products. We will share with you more on this soon!

In 2019 we recommit ourselves to our mission of Making Every Voice Heard.  As usual the user will be at front and center of all that we do. Avaz is here to stay and grow with you, every step of the way!

Here’s wishing you and all your loved ones a very happy, healthy and prosperous New Year!

In our pursuit towards making every voice heard, 2018, we believe has been a milestone year. We made some big updates to existing versions of Avaz for Communication to give you a product that learns, gets better and grows, just as each of our users do. We have released some new languages in Avaz for Communication and have many more in the pipeline. We are excited about this as we believe that language should never be a barrier in communication. With every new language, we get one step closer to creating barrier-free communication for all. We love interacting with our users to understand how we can make Avaz work better for them. In this regard 2018 saw us reaching out to more parents and users through our workshops and showcases. This, especially, meant a lot to us.

So here’s a quick round-up of 2018 – the year that was!

Collaborations and New Products

Team Avaz has always believed in bringing together great ideas to create products that enable and empower. 2018 was deeply significant in this regard. This year saw some incredibly powerful collaborations with multiple domain experts that led to the creation and release of two amazing new products.

• MDA Avaz Reader – The Madras Dyslexia Association is among India’s most respected and experienced organizations working with children with Dyslexia. With over 20 years of expertise in dyslexia education and support, they have created a variety of tried and tested modules to enable struggling readers to read better. To make this expertise available to more children via easily accessible technology around the world, Avaz has collaborated with MDA to create the MDA Avaz Reader app. The Reader app enables dyslexic children to read independently through methods and features that have proven to be powerful and hugely effective over the years. You can download the app here – Apple App Store & Google Play Store

• Avaz Vietnamese – We partnered with Viet Dynamic Connections to release an AAC app that is customized and localized for the users of Vietnam. The app was released in less than a year of collaboration. We are very excited to have been able to expand the repertoire of languages on Avaz. You can download the app here.

Avaz Community

2018 saw a rise in the number of support groups being formed by parents of Avaz users. These online and offline groups are completely driven by parents who have come together to support each other and share insights, tips, and resources related to Avaz  and communication. We are grateful for these communities. They help us stay grounded and inspire us to keep improving Avaz. 

Workshops & Events

2018 was a year in which we conducted multiple workshops for parents, caregivers and therapists around the world. These workshops were held both in person as well as remotely in the form of webinars.

The aim of the Avaz Workshops are two-fold –

1. To introduce the concept of AAC and how it is beneficial for children as well as complementary to work done by caregivers and therapists.
2. To run through the various features of Avaz.

The workshops cover all aspects of AAC and Avaz. Right from setting up and customizing the Avaz app for each user to giving ideas on how AAC like Avaz can be integrated into daily life, the workshops give training and information that is informed by years of user inputs. We have been receiving feedback that these workshops have been immensely useful for the attending parents, special educators and speech therapists. They have also been very effective in addressing doubts related to various aspects of the app and its use.

If you would like to have our team conduct a workshop or webinar for your school, team or for a group of parents, do drop us a mail on support@avazapp.com 🙂

The year also saw Avaz participate in a number of events & showcases, some of which you can read about here  and here. We were also present at the Global Autism Convention in Bangalore, India among other really interesting events through the year.

App Updates

The first quarter saw us overhauling in-app support on Avaz. You can now reach out to us easily via chat while using the app itself. The Avaz Live function was made completely functional and easily accessible. Avaz Live can be used for remote therapy sessions with speech therapists. The therapist, in turn, can also use Live to operate Avaz at the user’s end to take them through use and learning activities. These two features were rolled out for Sri Lanka, Denmark, Australia, France, India & US over the year.

The Avaz App was made fully compatible with Android devices. What’s more, the App is optimized to be used on Android devices of ANY screen size. Some Android only new features are the option of sharing messages created on App with contacts on WhatsApp and the Bubble feature, with which a user can always quickly access Avaz, without having to close the app they are using.

Coming to version specific updates, Avaz Sri Lanka had a comprehensive Sri Lankan Tamil Vocabulary added to it.

As we look back on the year gone by, we cannot wait to do much more in the coming year. Thank you for supporting us and continually pushing us to bring you only the best! We look forward to having you join us as we move ever onward towards Making Every Voice Heard in 2019 and beyond!

The lights are up everywhere and the holiday cheer is all around us. Christmas is the time for friends, family, gifts, decorations, and delicacies. During this holiday season, the change in routine, new visitors, unaccustomed foods, and the decorations can prove to be a challenge for children on the spectrum. The lights, smells, and crowds could be extremely overwhelming to them. With a bit of forethought and planning, you can easily make this holiday season more enjoyable and comfortable for your child.

Here are some tried and tested tips to host an autism-friendly Christmas:

• Planning and Preparation

Understanding your child’s needs and preparing accordingly is the first step during the holiday season. Plan the events of Christmas in advance and explain the schedule to your child a few days earlier. Run them through the plan a couple of times, if necessary.

You can show them photos of expected visitors. You can also create a social story that highlights the happenings of the day.

• Autism-Friendly Decoration

Children on the spectrum have strong sensory needs. So make sure to decorate your home in a way your child finds welcoming and comforting. Decorate your home gradually rather than doing it in one go. This would make the change gradual, instead of it being a sudden surprise to your child’s senses. If possible, do involve your child in the process of decorating the house and the tree.

Another thing you could do is to use gift wrap that is not too flashy or jarring on the senses. You can also wrap gifts in cellophane or any other transparent material to reduce the anxiety of not knowing what’s inside the present.

• Be Ready with Familiar Food

A lot of children on the spectrum are very particular about their food preferences. So try preparing meals that your child is accustomed to. It is true that preparing food is one of the most stressful jobs. But cooking for an autism-friendly Christmas could be as simple as making a sandwich or home-made chicken nuggets (with some festive touches of course!) for your child. Amidst all the merrymaking, do keep an eye on the number of sugary products consumed.

• Prepare Your Family

If your family is visiting for the holidays, give them a heads-up on what to expect, how to interact and how can they be of help in case of anxiety-related issues or possible meltdowns. Prepare your family members for strategies that can be used to minimize anxiety or behavioral incidents. For instance, if your child prefers not to be hugged, provide other suggestions for interaction that your child finds comfortable.

It might also be helpful if you can ask them to remain calm and neutral when the child is experiencing an overwhelming situation.

• Plan for a Sensory Retreat

Make sure to have an “escape” plan for your child in case they show any signs of stress or discomfort. Teach them how to access support when a situation/place becomes overwhelming. You can also designate a quiet place for meals in case they find a huge family meal triggering. If you are traveling for the holidays, carrying your child’s favorite toys, books, and noise-canceling headphones is highly recommended.

So this Christmas, don’t stress! Just plan a tiny bit in advance. Make use of these strategies to make this holiday season a fun-filled, memorable one for your child. And don’t forget to give thanks to your family and friends for their support in hosting an autism-friendly Christmas.

We would love to hear about your experience using some of our suggestions. How do you plan and prepare for Christmas? Do share your own strategies with us and other caregivers, in the comments below! Also, share with us your favorite memories from this holiday season!

Team Avaz sends loads of love, festive cheer and wishes your way!

Wishing you and all your loved ones a Very MERRY CHRISTMAS and a Happy New Year!

“I believe that VaccesS 2018 will create a positive impact in the field of disability. Common people find their essentials anywhere, anytime. We hope that the gadgets showcased at this event for persons with disability will also be similarly available soon. Awareness & thoughts of inventing accessible and adaptive objects for people with disabilities should increase among common people.”

– Ms. Radha Ramesh, Director, Vidya Sagar.

Vidya Sagar (formerly known as The Spastics Society of India, Chennai), is an organization working with people with multiple disabilities. This organization is proactively working towards meeting the needs of the evolving disability movement through advocacy and innovative awareness programs. One such program in this direction is VaccesS, designed to create awareness on access & accessibility.

VaccesS serves as a platform to connect people & organizations creating accessible designs, equipment, and assistive devices to people with special needs, NGOs, schools for people with disabilities and the like. VaccesS also successfully brought together various sections of the community, including mainstream educational institutions, corporates, builders, architects, government officials and more.

Many activities and games were conducted through the course of this event. All if these were designed with the aim of enabling participants to experience “enhanced ability” in a fun, interactive fashion.  The exhibition showcased various products and equipment of day to day utility with multiple accessibility features, designed by different companies. Also featured were assistive devices and information materials on various aspects of access. 

Team Avaz was a part of this innovative program. The opportunity was used to present the Avaz App to a diverse set of stakeholders. Many participants took pride in knowing that Avaz is an India-based organization working in the AAC & AT space.

The most heartwarming highlight of the two days was the Ramp Walk featuring the students, staff and alumni of Vidya Sagar. Using the school’s wheelchair ramps to stage the show, the literal and figurative references were unmissable.

Wearing shades of white, a group of 40 models walked the ramp, exuding great confidence and joy. The walk showcased  clothing with simple adaptations to make them more accessible for people with disability. Some of these adaptations included Velcro fasteners, clothing with alternative access points to suit variation in motor skills of the wearer and alterations in the way of wearing the clothes to ensure that the support belts were not visible.

The clothes were trendily accessorized with scarves, stoles, and bags from Kalakkal Kadai*, an entrepreneurial venture  of the students of Vidya Sagar. The models were mighty thrilled to walk the ramp, many even counting down to its start! The joy, confidence, and pride of being a model on the ramp was evident on every face!

“It was inspiring to see the pioneering work being done to innovate, design and build devices for people across the disability spectrum to use, with active input and participation from the users. VaccesS brings together the whole community of designers and builders, researchers and practitioners as well as users and their families. It provides a vibrant platform to create awareness of both the needs of the disabled as well as the kinds of assistive devices available to enhance lives. The program is a celebration of the human spirit to rise above adversity.”

– Shankaran  Nair, Chairperson, Vidya Sagar

VaccesS  has successfully created awareness on the different forms of Access – physical access, access to communication and information, and most importantly attitudinal access. This event was a definitive step towards making the inclusion of people with disability a reality.

*Kalakkal Kadai – A shop at Vidya Sagar where all the products are made by the students as part of their training at Employment Education Centre (EEC).  

We would love to hear from you if you or your organization are conducting such events. Write to us in the comments section below and we could feature your event on our blog soon!

“I feel that society only gives us 30% opportunity. While we have to put 130% effort to be capable!
We don’t want to take a jump ahead nor do we do we want to lag behind. What we want is to walk together with everyone in the society.”
– Dipak Ghosh, Disability Rights Activist

A few weeks ago, we had a chance to present our work and attend Empower 2018 – an Assistive Technology conference in New Delhi, India. Thinkers and innovators from the  Indian Institute of Cerebral Palsy (IICP), National Institute of Speech and Hearing (NISH), as well as those from various Indian Institutes of Technology (IITs), among others, were present. It was a great learning experience for us, to be able to interact with brilliant minds from across the country.

The interaction and new friendship we cherish the most from Empower was the one we had (and continue to have!) with Dipak. Dipak is 33. Having completed his BCom. (Hons.) in Accountancy, he is an accomplished artist and musician. He is also among India’s foremost advocates for equal rights and opportunities for persons with disabilities.  

Dipak was diagnosed with Cerebral Palsy when he was an infant. He was almost three years old when he was able to sit up. Because of CP, he has very limited use of his hands. This, however, was hardly a deterrent for Dipak. Being a creative child, he taught himself to use his legs to write, paint, play and engage in his daily routine.

(From Right) Narayanan (from Avaz) with Dipak (centre) and his caretaker Sumit – Empower 2018

As a child, Dipak was quite naughty, often getting into trouble. He passed his secondary education from the Center for Special Education – IICP. He attributes a large part of his success to the support he received during his schooling here. His school life was full of excitement and fun in the company of his friends and teachers. An academic topper, he received several medals in the sports as well. It was here that Dipak learned to draw and play musical instruments with his feet.

Dipak also began using the keyboard very efficiently with his toes. But this was getting extremely demanding and tiring for him. Hence he began searching for a simple and effective communication tool. This was when Dipak came to know about the Avaz AAC app through IICP. He was thrilled when he found Avaz easy and effective to use for his specific requirements. Dipak began using Avaz in 2013 and there has been no looking back since! You can watch a video of him using Avaz here –  

Dipak’s mother is a huge influence and inspiration for him. She has always believed that there is no greater dignity than serving others. Taking a page out of his mother’s beliefs, Dipak is today a well known and respected advocate for the CP community’s rights, inclusion, and opportunities. As a public speaker and activist, he has inspired many by his example. He is currently working on a project called the Media Lab in collaboration with the National Resource Center for Augmentative and Alternative Communication (NRCAAC). This project is looking to formulate a new concept of understanding and expression of ideas, aspirations, feelings, and thoughts.

For all his accomplishments, Dipak was awarded the Surrendra Paul Memorial Award for Courage. He was declared The Most Creative Adult by the Governor of West Bengal.

Dipak is a great inspiration, not only for his community but also for each one of us. His story pushes all of us at Team Avaz onward with greater resolve towards Making Every Voice Heard!

Avaz is now available on Play store.

Download Avaz for free: https://tinyurl.com/y6wodn8h

In India, download Avaz for free here: https://tinyurl.com/y9fxazv8

AVAZ App for Communication, the award-winning, research-based Augmentative and Alternative Communication (AAC) app is now available on the Play Store! The latest version of Avaz app works seamlessly on the Android platform. It brings you the same high quality, features rich, and world-class experience that you have come to know and love about Avaz.

At present, Avaz is available on the Play Store in four country-specific vocabularies – for US, Australia, India, and Sri Lanka.

Avaz’s latest version comes with inbuilt screen customization to fit small screens. This makes Avaz compatible with Android phones and tablets of any size! Avaz’s Android version continues to be incredibly user-friendly and customizable, with all of its powerful features intact.

With continuous support from the community, we keep striving to enhance the app with new and improved features. The Android version of Avaz is the result of the feedback and requests received from the community.  

The release of the Android version of  Avaz App for Communication is yet another step in our journey toward Making Every Voice Heard!

We invite you to join us on this journey. Download the app here:

https://play.google.com/store/apps/details?id=com.avazapp.international.lite

Thanksgiving is a joyful time for the family with food, fun, and gratitude. However, the unusual schedules, new foods, and people-packed homes can be a little overwhelming for children on the spectrum. With some forethought and planning, it is possible to build an inclusive environment that works for everyone.

Here are some practical tips for hosting an autism-friendly Thanksgiving!

• Plan as much as Possible

Preparation and setting expectations is vital for children on the spectrum. Plan Thanksgiving a few days in advance and sit your child down to explain the schedule. Show your child  pictures of the relatives who are expected to turn up. Run them through the plan a couple of times. You can also set expectations on your child’s behavior and explain them that they would be rewarded for their good behavior.

• Prepare Your Family

Preparing your family is as important as preparing your child for Thanksgiving. Be it visiting family and friends or your Thanksgiving hosts, do let them know in advance of your child’s needs. Help them understand sensory meltdowns. You can also educate them on what kinds of interactions work and how to appropriately respond to the child under different situations.

• Make Sure to have Familiar Food

Children on the spectrum can be very particular about their food. Unfamiliar food items, textures, tastes or smell might put off the child. So prep meals that the child is familiar and comfortable with. You can also offer a small portion of a new dish that the child is not accustomed to. Treat the child with a generous portion of their favorite food right after!

• Prepare for Sensory Needs

Children on the spectrum have very strong sensory needs. Noise can be overwhelming, leading to anxiety and possibly meltdowns. Carrying with you something like noise-cancelling headphones can help. Offer these to your child so that they can “turn off” the noise around them.

If possible, seat your child at the end of the table. Providing this extra space could help reduce sensory overload.

• Have an Escape Plan

Make sure that you anticipate and plan for your child, for any signs of stress or discomfort. Inform your family members in advance, so that they can also be of some help.

Create a safe space to escape – a room, if possible. This will be of great help when the child has sensory overload. Have their favorite toys and activities at hand to provide familiar comfort and relief.

Play around with these tried and tested ideas to celebrate an autism-friendly Thanksgiving with your family and friends! Do share with us in the comments below, the strategies you use to make this season a happy time for your child. We hope you create lasting memories with your loved ones, with good food and music during this holiday!

And don’t forget to thank your family for their support on hosting an autism-friendly Thanksgiving! 🙂

Team Avaz sends your way immense thanks for all the love and support you have given us over the years! Wishing each one of you a very Happy Thanksgiving!

Self Care Week is observed between 12th – 18th November all over the world, to raise awareness about how people can take care of their own health.

Typically, caregivers of individuals with special needs put the well being of their wards before theirs. They are constantly overworked with various aspects of supporting and caregiving. Eventually, caregivers reach a point where they begin to completely ignore their own needs. Prolonged neglect of the self could lead to burn-out and a variety of mental health issues. This, in turn, impairs their ability to be an effective caregiver.

Hence, Self Care, in the context of caregivers takes on a deeper meaning. Self-care is about keeping one’s own well being – be it physical, mental or emotional – also on the list of priorities.  Adding some “me time” helps you rejuvenate. Only if YOU are as well as you can be, all things considered, can you provide care to the best extent possible.

This by no means indicates that you add more pressure to your time and work. At the heart of self care is kindness to the self. It is only a loving reminder that your own well being is equally important, if not more. And there are ways in which any caregiver can do this for themselves.

Here are some self-care ideas that you can try out:

FIND A SUPPORT SYSTEM

• Support Groups: Look for support groups, in-person or online. Interact with others facing similar challenges. This peer group could help you feel supported, connected, and provide relief, as you share your difficulties with those you can relate to. These groups help you realize that you are not alone. They help you build the confidence that you will find a way. Some of the parents we work with have found such groups to be extremely helpful. Find a list of such groups at the end of this post.
• Professional Support: Therapy or counselling can help you manage your fears and anxieties. There is no shame in seeking professional help. Seek out a therapist or counsellor who can help you work through specific challenges and issues you face as a caregiver.
• Support Closer Home: Catching up with friends and close family you enjoy spending time with is a great way to destress and show yourself some love.

DO THINGS YOU LOVE

Find relaxation and pleasure in doing activities you enjoy. It can be as simple as a stroll along the beach or dining in your favorite restaurant. The more relaxed you feel, the more patient, caring and proactive you can be as a caregiver.

Pick up a hobby that makes you feel happy and work on it. Consciously try carving time for it. Once a month is also great. This can help you feel connected to yourself. Care for your body, go for a run or choose a workout routine. You could also try having a wish list of activities you would like to do. Pick one when you unexpectedly find yourself having some free time!

MEDITATE

Mindful meditation can help you slow down and be in the present moment. Even 5 to 10 minutes of meditation a day can be a great stress reliever.  You could make use of guided meditation apps or audios designed specifically for this purpose.

Try bringing your attention to something you usually do on autopilot. It can be something as simple as brushing your teeth, driving, eating, or performing your morning routine. This too is a form of meditation!

Self-care is critical for caregivers of children with special needs. Practicing self-care in small doses and as often as possible, can enable you to be a better advocate for your child. Incorporating a few of these self-care ideas in your day will help you in the long-run.

How do you care for yourself? Share with us in the comment section below 🙂

Here are some links to groups and websites for more self-care resources:

SCAN – An Indian based parents support group.

Resources for SLPs and Therapists:

https://blog.asha.org/2017/06/29/9-self-care-tips-for-the-time-crunched-slp/

http://speechymusings.com/2017/03/28/self-care-tips-slps/

October was observed as AAC Awareness month worldwide. Team Avaz worked through the month to spread awareness through various activities, online as well as offline.

A strong and well-connected community is core to any movement, working towards awareness. To this effect, we compiled a series of AAC-related questions, asked by members of Avaz user groups, and opened it out to the Avaz community, to provide answers. This exercise provided deeply relatable and insightful responses drawn from the community’s experiences.

First-hand narratives shared by AAC app users added richness and context to our understanding of the larger picture of what it means to create awareness. Halloween and Diwali at the end of the month, helped us spotlight the unique challenges faced by children with autism during such holidays. This opportunity was used, to document several tried and tested ideas to handle the identified challenges.

Team Avaz participated in the Open Day conducted by Vidya Sagar – The Center for Special Education, Chennai. Live demonstrations of Avaz app was made to parents, caregivers, and speech therapists. In addition, a general awareness session on AAC was held and related queries were answered in this event.

Our team also attended Empower 2018, an Assistive Technology conference in Delhi. Here, we got the opportunity to share our journey and experiences of building Avaz as a product, with various users and stakeholders in the Assistive Technology space. This experience, rich with interaction and exchange of ideas, helped us gauge a few things with greater clarity –

1. Some of the gaps that exist in our own work and
2. The long way we collectively have yet to go, in making accessibility of every kind, a reality in all aspects of life.
   

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As we mark the end of the AAC Awareness Month 2018, we are grateful for the continued support received from the AAC & Avaz community. We rededicate ourselves to listening to the community’s needs and using insights thus gained, to constantly strive towards bettering our product offerings. We reaffirm ourselves to our mission of always creating cutting edge, quality AAC products, and solutions, to make accessibility a reality for all!

The festival of lights is here and it is time for celebrations with our loved ones. Sweets, decorations, gifts, diyas*, and fireworks fill this joyful festive season.

However, loud noise from the fireworks is bothersome for the elderly and ailing, pets and individuals with hypersensitivity. This impact is especially pronounced in children on the autism spectrum. Sudden exposure to loud sounds can lead to a startle reflex that triggers seizures in children with multiple disabilities. For children with social anxieties, the constant stream of visitors may be another source of stress.

That said, it is possible for your child to enjoy Diwali, just as much as the next person. All it takes is a tiny bit of planning. Here are some ideas for you to try out and create some sparkling Diwali memories this year!

GENERAL IDEAS

Whatever be your plans for Diwali, talk to your child ahead of time about what to expect.

How to Prepare:

• Let them know that there will be loud, unfamiliar noises, lots of people, bright lights, a change in routine and so on.
• If your child responds to visual aids, you can use photos to create a story that illustrates the activities you will be doing that day.
• Share with your child why you are excited to celebrate Diwali. Talk about what you enjoyed doing as a child.
• Let your child take the lead in deciding what they would like to do 🙂

NOISE

Noise is inevitable on Diwali these days.

How to Prepare:

• In the run-up to the big day, consider watching videos of fireworks while gradually turning up the volume over time.
• Prepare a comfort pack containing toys, books and other objects of comfort close at hand so that your child can try and focus their attention away from the noise.
• Consider purchasing good quality ear plugs and headphones for your child. Noise-canceling headphones are the most effective because they replace irritating environmental noise by producing calming white noise.
• Identify safe spaces that soothe or calm your child. For instance, it could be your room or theirs.
• Plan indoor activities beforehand to engage their attention away from the noise.

On Diwali Day:

If the noise is getting to them

• Make use of headphones and earplugs.
• Pull out the comfort pack you readied earlier to offer some relief.
• Take your child to the safe spaces you identified earlier, to calm them down.

NEW CLOTHES

For some children, new clothes during festivals could be anxiety-inducing. You can take some steps beforehand to help them manage this.

How to Prepare:

• Take your child for shopping to pick their own clothes, if that is a possibility.
• If that’s not possible, show them the new clothes picked out for them. Let them feel the cloth, the textures in it, enjoy the colors, and get familiar with it before the festival.

On Diwali Day:

• You could help your child wear new clothes over the clothes they already like, to increase their comfort level.

ANXIETY FROM MEETING PEOPLE

Social anxiety may get compounded when there is a constant stream of Diwali guests. You may also have to go visit others’ homes. There are ways you can take the edge off this anxiety caused by this.

How to Prepare:

• Request your friends and family to visit over a couple of days, as opposed to everyone coming on the same day.
• Similarly, you could plan your visits to others’ homes over a couple of days.

On Diwali Day:

• Involve visiting family and friends in activities that your child enjoys so that your child too can have fun in their company.

FIREWORKS

• Use your discretion before taking your child close to fireworks or to see them.
• If they wish to watch fireworks in the sky, get them to wear noise-cancelling headphones before heading out.
• Do maintain a safe distance from fireworks. The bright sparks may be triggering for some children even with noise cancelled out.
• If your child is not keen on fireworks, you can always switch to some quiet and comfortable indoor activities which you pre-planned.

A bit of thoughtful preparation and execution will go a long way in making this Diwali special for your loved ones. What are some of the things that you do to make this holiday memorable for your child – how do you go about planning it? What activities do you look forward to enjoying with your child?  Do share with us in the comments section below 🙂

If you found these ideas useful, do take a minute to share this blog post with others who might benefit too!

On this auspicious festival of lights, may the glow of joy, prosperity, and happiness illuminate your life and your home.

HAPPY DIWALI!

*Diyas – earthen oil lamps

Halloween is an exciting holiday for the kids. They love trying out different costumes and going trick-o’-treating in their neighborhood. Costumes, decorations, music, and candies are the highlights of this holiday! However, the same may become overwhelming, and at times challenging experience for children, who are on the autism spectrum. 

Unfamiliar people, places, social interactions and even some of the costumes could cause anxiety and sensory overload for the children. But careful preparation and planning can help turn this into a memorable Halloween!

Here are some ideas to help you and your child enjoy the day.

BEFORE HALLOWEEN:

• Create a visual story of what Halloween may be like for your child, with some pictures or drawings. This will help your child prepare for the day’s activities.
• Try on costumes before Halloween or let your child pick their favorite costume. If the costume is uncomfortable or doesn’t fit right, it may cause unnecessary distress and ruin their fun.
• Consider a Halloween costume that fits over your child’s regular clothes. Have them wear it for short periods of time and at increasing intervals over time.
• Practice going to a neighbor’s door with your child, ringing the bell or knocking on the door and receiving candy.

ON THE DAY OF HALLOWEEN:

• Understand the comfort zone of your child and plan accordingly. For instance, if your child is not comfortable trick-o’-treating, you can start by going to three houses. Assess how your child is doing and build up to more houses the following year.
• Partner with family and friends that your child likes.
• Take your child to an activity in an already familiar community, such as a school festival or a neighborhood party where the child is comfortable and knows the people around.
• If you are giving out candy at your home, give your child the option to give a piece of candy. During the day, practice greeting people and giving out candy.
• If your child is afraid of going out at night, plan Halloween activities that can be enjoyed indoors or during the daytime.

A bit of forethought and planning will go a long way in making Halloween super special for your child! We hope you find some of these ideas useful this Halloween. Do share with us some of the things that you do to make this holiday memorable for your child – how to go about planning it? What activities do you look forward to doing with your child?  Do write to us in the comments section below 🙂

Here’s wishing you, and all your loved ones a very enjoyable, fun &

HAPPY HALLOWEEN!

In today’s blog post, Kavitha* shares her daughter, Pooja’s* journey with AAC.  

Kavitha is a designer by profession. She lives with her family in Mumbai, India. Pooja is her 8-year old child, who is non-verbal and has been diagnosed with Angelman Syndrome.

Kavitha reflects upon her experiences with AAC adoption in India and her child’s progress through continued use of AAC apps: 

Pooja’s Journey

Pooja was diagnosed with Angelman Syndrome at a very early age. Among other characteristics typical to this diagnosis, she was non-verbal. She faced many transition issues in her daily life. Furthermore, Pooja also had certain behavioral challenges. 

Since Pooja’s scanning abilities were great, her therapist in the US had advised us to use Avaz instead of the Picture Exchange Communication System or PECS. That was one of the best suggestions we were offered. And there has been no looking back since then! After the introduction of  Avaz into her life, we noticed that she was also able to overcome some of the behavioural challenges she faced.

When I came back to India from the US, I noticed that no one here was using AAC. Awareness levels too were very low. Since we had seen success with AAC, I was keen on its continued use for Pooja. I had to personally advocate for the use of AAC and Avaz in many of the schools that Pooja has attended over the years. I have since realized that persistence is the key.

Pooja is now in the 4th year of her schooling. After many years of persisting, Pooja’s teachers have finally added their folders into her AAC system. In fact, there used to be a time when I would write daily notes to the teachers in Pooja’s school diary, insisting that they use Avaz in school everyday. On the flip side, such persistence has not always yielded positive responses from teachers & therapists.

One such instance was when I was asked to stop behavior therapy at a reputed autism centre in Mumbai. This was because I was constantly insisting on the therapist using at least 5 minutes of Avaz with Pooja for her to pick up basic communication. The director didn’t understand my point of view. I was told that they will not be able to serve Pooja, as their therapists could not work in the manner requested.

It has been 3 years since we began using Avaz for at least half an hour daily. Regular use has enabled Pooja to do her tasks easily.  Earlier she would be resistant to doing the same work. Now we are at a stage where we are able to discuss Pooja’s daily schedule on Avaz, and she too knows her plan of action for the day.

Today Pooja is able to buy groceries or order her favorite food, french fries, at McDonald’s. She says “thank you” to people. She is able to express to me whenever she misses her favorite person – her Nani (maternal grandmother in Hindi). She wishes family members on their birthdays. She is able to recount to her teachers that she went for a movie and ate popcorn. She tells her dad about the time she spent at the mall with her Mama… The list is endless!

And the best part. She is now also able to read sight words on Avaz.

AAC awareness is gradually increasing in India, but I firmly believe that it could move faster. I really pray that one day, every parent, teacher, and therapist will wake up to the advantages of AAC. I hope that the understanding grows – that such a medium that acts as a voice for our children makes their lives way more expressive, independent and happy.

We are grateful to Kavitha for having shared Pooja’s story with us. Such stories inspire us to strive towards constantly improving the product and making every voice heard!

Share your thoughts! Leave us a comment!

Do you have a similar story to share with us? Write to us: support@avazapp.com

Picture Credit: Hoda Nicholas

*Names Changed

Gita Arvind is a scientist by education. She lives in Redmond, Washington with her husband and two lovely girls. They keep her curious about everything, from Disney characters to human nature!

Being a mother of a child with speech challenges, Gita is also deeply passionate about advocating for access to AAC for children with special communication needs. She wishes to share her daughter, Swati’s journey with AAC. The following is her account of this journey.

Introducing Swati

Swati is a happy, nonverbal 10-year old, who loves going up to people and asking them to sing to her the songs that she likes. The way her face lights up with a smile when they oblige, is a sight that instantly warms my heart. Don’t you think that is what communication is all about? That is, being able to convey a message that helps you satisfy a need? 

Swati using Avaz

Just so you know, in the instance above, Swati did not use speech to communicate, as she is nonverbal. Then, how did she do it, you might ask? Well, she used Augmentative and Alternative Communication (AAC) – specifically, an AAC App on her iPad. And this is something that I would like to talk to you about today.

This is something very close to my heart. It was born out of a desire to ensure that other parents in India, do not have to go through the same heartache and pain that I went through when Swati was about 4 or 5 years old and was still not speaking a word. Each new speech therapist that we consulted, suggested a different approach. But, no one talked about AAC until much much later. They only insisted on trying speech.

Finally, when Swati was around 6 years old, we tried Sign Language. But I found that it was a challenge for her because of the language’s heavy reliance on fine motor skills – and this was an issue for her. Furthermore, it is only understood by those who know sign language, to begin with. We then tried the Picture Exchange Communication System (PECS). That brought with it a different set of limitations. Swati mastered it so quickly, that we were running out of space on her picture books within no time! It was after seeing a bunch of speech therapists and professionals, reading and trying to gather as much information as I could, that I decided to try out an AAC App on my own, with Swati (who was around 7 years old then).

Since then it has been a long journey to get to where we are now. Today, I finally feel validated in my decision to have introduced an AAC App to her.

How AAC has helped Swati

Swati has benefitted in many ways since she started using AAC. Some of those benefits are explained below:

• Behavior

Today, Swati is able to independently make a sentence, to communicate what she wants. She does this on her device, which in turn speaks it out for her. At age 4 or 5, when she still wasn’t speaking, she would probably have had a meltdown while trying to communicate the same thing.

• Fine Motor Skills

Her pointing skill has improved. She is able to choose 1 icon from a grid of 4×8 buttons.

• Attention

Swati has to create sentences by choosing all the words required to communicate it. She is able to pay attention to the screen for the entire duration it takes for her to make a sentence.

• Demonstrate Cognition/Intelligence

Swati’s receptive skills have improved because she can now show what she knows, by choosing the appropriate button on her device. Her expressive skills are also improving, as she learns to express more about what she knows, using her device.

• Self Esteem

Most importantly, she is confident of being understood by anyone around her when she uses her device to communicate. That in itself contributes to an increase in self-esteem!

Why do I want to make this case for access to AAC before speech? 

I have seen how Swati’s life has improved for the better since she began using AAC apps. Given this experience, I strongly feel that it is my responsibility to educate and inform more parents and caregivers in India about AAC. I want to stress whenever and wherever possible about giving children access to AAC at an early age. I sometimes wonder how much more progress Swati could have shown, had she been given access to AAC at 3 years of age or even earlier- the typical age when children start to speak. And it bothers me that even today, speech therapists and other allied professionals in India are still unaware of these advances in technology. It is disheartening that they continue to insist only on speech production to parents of children with speech delays.

The app that we used for Swati was the Avaz App. This App is widely available in India and can be customized as per each child’s requirements. It is also available in many of our regional languages. That being said, Avaz is also more affordable compared to other AAC apps in the market and is much more user-friendly. Finally, I request all parents and caregivers out there not to be skeptical about AAC. Proactively consider introducing AAC to your child at an early age. 

We are really grateful to Gita for taking time and sharing her daughter’s story with us!

Write to Gita on gitaarvind@gmail.com

For sales related queries, write to ramachandran.d@avaz.in

Part 2 – Effective Communication Tips

Hope the first post of this blog series gave you some ideas on how to start modeling with AAC and Avaz. With this series, we are attempting to provide some reference points for you to run with, and make it your own. Or perhaps, some of the points discussed would spark an entirely new idea – which we would love to hear about!

In the present blog post, we will be discussing some tried and tested communication tips sourced from parents and therapists. As with the last post, these are in response to questions asked by first-time users of AAC apps. Please note, for this post, we have clubbed together two questions addressing similar themes.

Q2: How to encourage communication? To encourage communication – I have put together the whole sentence – “I want to blow candles” under the single picture of candle. Likewise “I want chips” under the picture of chips. I did this so that the complete sentence is spoken out by one touch. Is this OK?

Q3: I have started using Avaz only recently. I created a home screen for my child with his picture with the caption “I want” and then added toilet, water, food and some of his reinforcers like mobile, TV etc. I guided him to use Avaz. When I served him spicy food, he immediately came and touched the water picture. Now, should I insist on touching the “I want” picture or just add “I want water” to make him hear the complete sentence.

Ideas from the Avaz Community

• Adding the entire sentence under a single picture could restrict communication to only the pre-programmed sentences, thus inhibiting spontaneous communication. What if the child wanted to say something else about the chips or the candles, and not actually want them?  For example, what if you or the child wanted to talk about how yummy the chips were? We will not be able to do that if the whole sentence/request was embedded in one icon that says “I want chips”. So, it would be best to separate the words and model different ways to use those words.
• Furthermore, the child taps an icon and it pops up, the child sees the icon of a candle but hears the sentence “I want to blow the candle”. This could lead to confusion about what they hear and what they see. Instead, if the words candle or chips are learned and used independently, this problem may not arise.
• As the child starts using Avaz or any AAC tool, they will eventually attempt to say the words they hear. When that happens, it will be difficult for them to say an entire sentence to start with and might discourage them from trying. Instead, making a start with different individual words would motivate them to try speaking out loud.  

Hope these ideas are helpful! Do you know of any other simple and effective methods to encourage  communication? Please do share your thoughts on all of this and more, in the comments section!

We sincerely thank each parent, teacher and SLP who contributed with their valuable suggestions. Our special gratitude to Simona Korkmaz, Gita Arvind, Gemma White, and Priya!

Part 1 – Modeling

This is going to be the first in a series of blog posts that address questions raised by new users. For each question, we have compiled the responses received from the community. We have also included inputs from our side.

Avaz app being used to model

In a previous blog post, we had spoken about the importance of community ties, sharing and learning while supporting children with disabilities. We had then gone on to solicit experiences from parents, teachers, SLPs and other caregivers to build knowledge for new users of AAC and Avaz. While we knew that the process would be deeply insightful, nothing prepared for the sheer magnitude of responses and, the thought behind each of them!

We would like to extend our heartfelt gratitude to each one of you for your contribution and time.  

We hope this week’s question would give us all a chance to discuss modeling with AAC and Avaz. We would love for you to share more of your thoughts, ideas and definitely questions, in the comments section below.

Q1: Each time my child wants something, they take me to the place where it’s kept. Be it sweets or toys. How should I encourage them to use Avaz at that time? It doesn’t occur to them to always to use the device.

Ideas from the Avaz Community

• I would make it a habit to model on AVAZ as much as possible. Especially the items my child wants or uses regularly, like food or toys. When they pull me to the item they want, I would open Avaz, and ask them what they wanted. I would encourage them to answer by using AVAZ. If they do not know how to use it, you can model the answer with them in a hand-over-hand manner. For this, I would also try and keep the device at an easy reach always.
• Say, for instance, your child grabs your hand and takes you to the cookie. You will then have to pick up the device and draw their attention to it. Then proceed to press the words, “I” “want” and “cookie” while speaking the words, “I want cookie”. Over time and with repetition, they will realize that AVAZ is the way to make themselves understood. And when they get here, they will use it!

• You can choose their 5 most favorite items. Model asking for these items. With time and progress, make sure that they get these items only when they communicate through the device.

#AvazSays

The key here is to model language for your child by pointing out words in Avaz. If your child is a beginner, start by selecting single words while speaking the sentence. Once the child gets used to Avaz, you can encourage them to make phrases and then complete sentences. For instance, you can start with teaching how to say ‘toys’, and then teach ‘want toys’. Finally, you can take creating a complete sentence like, ‘I want toys’. Continue modeling the use of Avaz until he learns to use it independently.

To give you a starting point, here’s a video of a leading AAC researcher modeling using Avaz.

It’s October and it is a special month at AVAZ. Our goal is to have every voice being heard and give our children the opportunity to share every thought!

We have many exciting offers planned for you to celebrate this month!

Celebrate this October with:

• 50% off on all individual app purchases (and in-app purchases)
• Additional 50% off on purchases of 20 copies or more through Apple’s Volume Purchase Program
• Valid until October 31st!

Avaz US, Avaz Australia, Avaz Dansk, Avaz Français, Avaz Svenska, Avaz India, Avaz India (Android)

Do spread the word and help this reach the people it can benefit!

Queries?

Our Support team is here to assist. You can get in touch with us 24×7 at support@avazapp.com

Watch this space for more exciting news and offers.

Kiran is an energetic and enthusiastic kid. He is just like any other child his age – playful, curious and loves to learn new things! He also happens to have cerebral palsy and is hearing impaired. Hearing loss or impairment is a partial or total inability to hear. In children, hearing problems can affect the ability to learn any spoken language. This is mainly due to the fact that languages are learned mostly by hearing and reproducing the sounds that were heard in the first place.

With the aid of sign language and communication tools such as Avaz, children like Kiran can learn to communicate. Avaz lends itself seamlessly to a multi-modal approach, making it ideal to use with the signing.

Watch how confidently Kiran uses Avaz to answer the questions signed to him!

At Avaz, we are honored and humbled to enable millions of kids around the world like Kiran by being a medium for their voice.

This International Week of the Deaf, we reaffirm and rededicate ourselves to Making Every Voice Heard!

With Communication, Everyone is included!
With Avaz, Every Voice is Heard!

Leave us a comment on how people can make the best of multi-modal communication.

Community ties, sharing and learning has always been an important part of how caregivers are able to better support children with disabilities. While being a great source of strength, communities also build knowledge that is grounded on experience and context. The beauty of such knowledge is that it is dynamic and keeps growing as more people add to it. This is the kind of knowledge that is deeply relatable for many on a personal level. And easy to adopt, given that they have been tried and tested!

A couple of weeks ago, parents organized a Q&A session on an Avaz messaging group in India. Parents posted questions about communication and getting started with AAC. Some of these questions were answered by a few of the more experienced parents on the group. As the process went on, we realized that this Q&A is relevant for parents, therapists and teachers worldwide. And we would love for this knowledge to keep growing. We are posting some of those questions here and inviting you to weigh in with answers based on your experience and expertise. Do chime in with your thoughts and answers on the queries that follow, in the comments section below.

Q1: Each time my son wants something he takes me to the place where it’s kept. Be it sweets or toys. How should I encourage him to use Avaz – at that time? It doesn’t occur to him always to use the device.

Q2: How to encourage communication? To encourage communication – I have put together the whole sentence – “I want to blow candles” under the single picture of candle. Likewise “I want chips” under the picture of chips. I did this so that the complete sentence is spoken out by one touch. Is this OK?

Q3: I have started using Avaz since few days only. I created a home screen for my child with his picture with the caption “I want” and then added toilet, water, food and some of his reinforcers like mobile,TV etc. I guided him to use Avaz. When I served him spicy food, he immediately came and touched the water picture. Now, should I insist on touching the “I want” picture or just myself add “I want water” to make him hear the complete sentence.

We have been conducting multiple Avaz trainings around the world over the last one month! This has been possible thanks mainly to enthusiastic parents and partners, who are going the extra mile to help us spread the word.

“Learn about Avaz” was conducted by Lalitha, who leads the Customer Success team at Avaz at Redwood City, California. The session included how to set it up, customize it for the child’s needs, the latest features of Avaz

“Introduction to AAC and Avaz” was conducted by Narayan, who heads the Product Development at Avaz, at Noida, India. The session included introduction to AAC, busting myths around AAC and features of Avaz. 

“Let’s Communicate: AAC through High-Tech devices”, organized by the Sri Lankan Association of Speech & Language Pathologists (SLASLP) in Colombo, Sri Lanka. The session covered the features of Avaz (amongst other AAC apps) and also had a hands-on session for the participants. 

We are very excited to share today’s post, which is written by Smrithy Rajesh, a special educator and mother of 10-year old Advaith’s (Addu). Advaith is diagnosed with Autism, Sensory Processing Disorder and ADHD.

Smrithy is a superb mentor and guide for parents who are just starting to use AAC. She has a YouTube channel –  where she shares learning and communication strategies and you can read her blog here.

Advaith is 10 years old now. I am not worrying about his speech because of his excellent  communication skills. He has apraxia and so making sounds is hard for him and words are not clear. For building communication skills we started with sign language then PECS and Avaz.

Now he is communicating independently using Avaz for all his needs, expressing feelings, dislikes, preferences, sensory overload, asking for medicines if he has any discomfort, asking for steam if his nose is blocked, ordering food in the restaurant, connected with family and friends  and so on.

He is using Avaz in all places and in different situations. That is his communication device. That really helped him to reduce his anxiety issues. In the video below you can see, how he is connected with his customers. He is sending messages to them using Avaz. You can see his confidence level and comfort level.

Communication is happening everywhere. Use each situation to build communication skills. Start with their need based communication. It really changed our life!! Of course he is able to  use words for communicating. AAC stimulates meaningful speech!

See Advaith communicating with his customers in this video below.

A proud entrepreneur, Addu sending thanks to his customers using Avaz. For most of his customers he used to send items by speed post. After that they send pictures and messages to him. Then I show him those pictures and explain to him. After that he sends messages to them using Avaz. He is fully connected in all steps and is able to understand. You can see, how happy he is!! We made this video by using his videos and some of his customers’ pictures.Most of the pictures got deleted, but we are thankful to all. Through this his communication skills are also improving and he is connected with more people.

What are some of the activities that we can do with our child using Avaz? 

This is one of the frequently asked questions from parents that we meet. And our favourite suggestion is reading a story along with the AAC system that the child enjoys! Using a simple strategy called RAAP – Read, Ask, Answer and Prompt, parents can really work on the child’s communication skills too.

Leave us a comment below if you have a different strategy (or activity) that you would love to share with parents!

(The inspiration for the infographic is this blog post from PrAACtical AAC. )

Download the high resolution version by clicking here.

Growing up, I have spent years watching my father work with children with different abilities. He is a paediatrician with a specialization in developmental neurology, so the house in the evening, which turned into a clinic, was always full of children with different problems. I have also seen the terms changing from challenged to disabled to special needs to differently abled. I won’t contest the terms, as I have realized that taxonomy neither changes the children nor the way we work with them.

Meera works as a theatre worker and teacher with Theatre Nisha

With my father, the experience was limited to observation. With my teacher, it went beyond observation. My teacher, Bala, is an actor and has spent the past 18 years working with children with learning disabilities. I remember my first class as a teacher in a school for children with learning difficulties. I had gone alone as a substitute for Bala. The only background story he gave me was – they’re exactly like you. It was the best initiation I could have received.

The brain is a fine instrument with a lot of possibilities, but one of its most vulnerable features is of adaptability and plasticity. One instruction from my teacher was enough for me to march into class with no stereotypes or biases. I was working with the children on a play that day, and I have been associated with that school for the past 6 years now. I have seen these children bloom as actors, graduate and become stars in their own right. I have seen children with ‘diagnoses’ of ADHD, Autism, Dyslexia, Cerebral Palsy etc. with co-morbidities, but I’m yet to see a child diagnosed with an incapacity to live a healthy life as a good human being.

Many ideologies work towards making these children trained in the ways of life we deem normal, but somewhere we fail to recognize the multitude that the term normal can encompass. It is not one, but many, and these children comprise that many in their own ways.

With specific reference to autism, the problem is of a different concern, mostly because the cause(s) is/are mysterious, ranging from curses of previous birth to lack of nutrition during pregnancy to changing lifestyles and junk food to inadaptability of mirror neurons. In my experience, they are children who watch life differently and hence, respond differently. What is organic and natural to them, may seem bizarre to us, but it does not give us the authority to change or cure them, for there is nothing incorrect about their perceptions.

My father once joked that we all have strains of autism. I actually agree with that to an extent, not to dilute the perception of autism but to make the understanding that the features they have, are features we all have, but in a more pronounced manner, a little more embraceable.

I work with children on theatre, and I must say that they are some of my best actors. Teaching theatre to them is no different from teaching others. It just requires more patience, and most importantly repetition. They love acting, for theatre as a craft requires one to suspend disbelief and respond honestly to an imaginary stimulus. And my children do it with aplomb. Their sense of imagination isn’t corrupted by social mores and institutionalized conceptions. Their free thinking and instincts make them the most honest people on stage. Albeit, the influence of movies and serials is there everywhere, and these children are not devoid of it; and sometimes it does become a strife to let them not succumb to the way a popular star responds. Nevertheless, giving them the space to think freely and imaginatively allows them to explore their instincts more than we do. Their access to their natural response is easier than most of us, who find thinking before acting more prudent than acting without thinking- something most essential for the craft of theatre.

From Bala, I learnt how to use each child’s capacity to the maximum, and this is not just based on skills they possess, but the skills they themselves wish to explore. If a restricted speech student wants to act, he/she will act, and dialogues and patterns of speech will be catered to ease. Speech exercises have allowed many of my students to speak dialogues with confidence and assurance. When the term starts, all kids get to choose their extra-curricular activity- dance, music or drama. One thing that has been consistent in all the years that I have been working is that the choice lies with the child. No teacher decides or the child what they are best at and should pursue. In this way, one doesn’t enter class with a fixed syllabus and a lesson plan. One works around each day, with every child in mind individually.

With time, working with them hasn’t changed them as much as it has changed me and my ways of teaching/working. More than teaching, all I have realized I need to do is create a space that is safe and healthy for them to be themselves, and the work is done.

Autism is not here for a cure. It is here to be embraced and worked with, not taught upon and transformed.

Meera Sitaraman has a Bachelors in Sociology and a double Masters in Sociology and Medical Anthropology. She works as a theatre worker and teacher with Theatre Nisha. She has been working with children for the past 5 years.

Today’s guest post is from Chitra Paul, a parent who uses Avaz with her son. 

I am Chitra Paul, Tarun’s mother and we are based in Bangalore, India. I am a clinical microbiologist by training and have worked for a few years before my son came into our lives. My career break became permanent when my son was diagnosed to be on the autism spectrum way back in 2008. Since then it has been a different learning path that I have been on. This led me to do my MA in Special Education and Inclusion from the University of Northampton, UK. My journey has made me into a proponent for inclusion for persons on the autism spectrum and I try not to miss any opportunity to advocate for them.

Currently, I also run a couple of support groups for parents via social media. I also provide support to parents on an individual basis in connection with parenting advice, education, intervention or just being a friend to talk to, all within the context of autism. (My email – chitraepaul at gmail dot com)

My son, Tarun, is a 12 year old boy diagnosed with autism. He is currently studying in Grade 6 of a mainstream school in Bangalore, India. He is a loving child who enjoys going to school. He has a few friends in school and enjoys being with his classmates. He loves reading and listening to music. He is learning the keyboard and can sing a little too. His favourite hobby is watching advertisements and songs on YouTube.

Being a parent to a boy with autism, I was constantly made aware about the importance of speech when my son was just diagnosed. However, what struck me as I read up more and more into this puzzle called autism was that many people were confusing speech for communication which was indeed the bigger challenge for these children. As my own son was non-verbal I too was constantly looking out for alternate options for him to communicate with.

It was at this point that I happened to hear a talk by Mr. Ajit Narayanan at the Autism Conference at NIMHANS in 2011. Avaz impressed my husband and me at that time itself. However, it was a device and the cost factor put us off. But I continued to follow up closely how Avaz was being taken forward. Additionally, as my son was just learning language I put off introducing PECS or any other AAC.

Turning point

However, things changed around when he was 7-8 when his special educator working on her personal belief discovered that he could write extremely well in perfectly good English with grammar and vocabulary intact. However, he needed some support to his hand when writing. At this point we realised that we need to provide him with a means to communicate and of course the first place I turned to was Avaz. By then Avaz had been modified to an iPad application and we purchased it as the prices were also well within our reach. This is how our journey with Avaz started.

Tarun’s Avaz personalized for his needs

Making Avaz work to Tarun’s strengths

However, as my son showed a greater inclination towards words and letters and not pictures, I realised I need to use only text when preparing the cards. That’s how we went about it. As my son had already shown that he was way ahead in using language and was already typing full sentences although nobody had taught him sentence formation etc., we started using the keyboard option at the beginning itself. Another factor was that my son also started typing which was much easier for him than writing. Because of these two factors I couldn’t make him to utilise Avaz in the usual manner as an AAC is advised to be started and used with children with autism.

However, since Avaz came into his life, his communication has grown in leaps and bounds and we often have conversations using the keyboard option which can also be saved. As he takes his iPad to school for work and communication, I have also created a personalised folder of regularly used words and sentences so that he can use them if he needs to communicate for daily needs. We have also used the same technique and used personalised material on Avaz during his occupational therapy and speech therapy sessions so that Avaz is his constant support for communication. The best part of Avaz is that it is extremely simple and easy to create sets of communication cards. This was voiced to me recently by another parent, who took my suggestion and purchased Avaz to use with her daughter who is on the autism spectrum. Avaz also has other features that are very unique to the needs of users in India like the option to create and use cards in various regional languages. Another great feature that supports and helps a parent to learn and adapt to the needs of their children is their application called Communication Adventures. I have used many of the ideas and tips listed in both these applications. One of the ideas suggests using it while reading with your child. As my son loves to read, I have used this strategy many a time with great success.

A glimpse of my conversations with Tarun

Some of these conversations were with his special educator, Ms. Priya, whose immense support helped him to reach this stage.

Do you have a story that you would like to share with us? Leave us a comment!

We are very happy to present today’s guest blog post from Julian Laferrera.

Julian Laferrera is a junior at Mount Holyoke College. She is majoring in mathematics and is in the teacher licensure program for secondary math education. She is a Peer Fellow in the college’s AccessAbility Office, where she mentors and supports other disabled students. Julian has been learning American Sign Language (ASL) for seven years, and is currently studying for a semester at Gallaudet University in Washington D.C.

This April, many people around the world are celebrating Autism Awareness Month. I am not one of them; I will be celebrating Autism Acceptance Month. Although these terms sound similar, they mean very different things.

Autism Awareness Month campaigns focus on bringing public awareness to the condition. Many parents of children with autism use this time to share the challenges they encounter because of their children’s autistic traits. Additionally, there will be many companies donating portions of their proceeds to autism research and early intervention. At face value, this sounds like a wonderful opportunity to talk about autism, a condition that is often widely misrepresented in media, and impacts the lives of autistic people, their families, their schools, and people they interact with everyday.

However, Autism Awareness campaigns are lacking in two ways: they ignore the prevalence of autism awareness already in the world, and they promote basic tolerance within the framework of autism as a consistent struggle or burden. Firstly, many people nowadays are aware of autism. Although stereotypes and myths abound, most people have a general idea of what autism means. Secondly, when Autism Awareness campaigns often frame autism as a disease, a burden, something that should be cured, it hurts autistic people. Many autistic people and their allies, myself included, believe that autism is a natural part of human diversity. Curing suggests that autism is inherently unfavorable, burdensome, and unwanted. I love being autistic, and it hurts to hear that some people think that my peers and I would be better off without autism.

Autism still can cause issues for me and others, but perhaps not in the way you think. Many of what people see as “challenging behaviors” can actually be reframed as a difficulty in communicating with neurotypical people. Growing up autistic means that sometimes neurotypical people do baffling things, and it’s hard to figure out the reasons why. Growing up autistic can be challenging when you process the world differently than others around you do. Growing up autistic is difficult when people don’t understand your ways of expressing yourself. When I say that I support Autism Acceptance Month, I mean that I view autism as an integral part of autistic individuals and that their challenges are not an inherent flaw but rather are a reflection on the neurotypical society we live in.

Given that many people are already “aware” of autism, the next step after awareness is acceptance of those differences. Unlike simple tolerance, acceptance requires effort, on everyone’s part to include autistic people in parts of society where they were previously excluded. Some autistic people don’t communicate with their mouths, or what comes out of their mouths is not connected with what they are trying to say in their heads. After recognizing communication barriers, practicing acceptance means providing and teaching alternative ways to express oneself, through AAC, sign language, typing or other ways. Acceptance looks like teaching about the rules of the neurotypical world, but not forcing autistic people to strictly adhere to them. Acceptance means working with autistic individuals to figure out what accommodations they need to thrive in a particular environment. Overall, the lives of autistic people and neurotypical people can improve when there is mutual respect and learning from one another.

In the end, Autism Awareness campaigns can have a negative impact on autistic people’s self-worth through implications of being a burden, promote cures for a condition that is simply a part of diversity, and seeks tolerance as its goal. Autistic people deserve more than just awareness or tolerance. If you are ready to put in the hard work of autism acceptance, then join me in celebrating Autism Acceptance Month.

Autism myths that parents and educators around the world would like to debunk!

What’s the myth that you would like to debunk? Leave us a comment!

[This is a re-post from our archives and unfortunately some of the debunking is still work-in-progress :(]

With the beginning of this ‘Autism Acceptance Month,’ we are entering the second phase of our “World Through Their Eyes” initiative.

We are starting this April with:

• 50% off on all individual app purchases (and in-app purchases)
• Additional 50% off on purchases of 20 copies or more through Apple’s Volume Purchase Program
• Valid for purchases on Android as well as iPad
• Until April 30th 2018!

Here are the links to the apps

Avaz FreeSpeech for Schools

Avaz US (iPad),

Avaz App for Communication (Android)

Avaz Dansk,

Avaz Français,

Avaz Svenska,

Avaz India (iPad),

Avaz India (Android)

Avaz Australia,

Do spread the word and help this reach the people it can benefit!

Queries?

Our Support team is here to assist. You can get in touch with us 24×7 at support@avazapp.com

Watch this space for more exciting news and offers.

Edited to mention that the discount is till the end of the month.

This Down Syndrome Day, we wanted to look at the progress made on meeting communication needs of children with Down Syndrome. In the early stages of development, kids with Down Syndrome show limited means of expressions compared to their peers. However, research and studies over the last two decades have shown that AAC helps children with Down syndrome develop better communication skills than their peers who are not exposed to AAC.

Further, research also shows that early exposure of children with complex communication needs (CCN) to AAC minimizes the potential for continued delay that these children face with developing language. In a 2010 study (Drager, Light and McNaughton, 2010), it was found that AAC intervention can have a positive effect on functional communication skills, challenging behaviour, language development (both receptive and expressive), and speech production. Unlike other studies that observed the effect of AAC on children between the age of 3 and 5, this paper specifically focused on understanding the effect of AAC exposure on children under the age of 3. The study recommends AAC intervention by the age of 6-9 months when a disability with the risk of communication risk is identified. That said, many caregivers still have doubts about using AAC. We looked at some of these doubts on using AAC for children with Down syndrome and asked: are they real, or are they myths?

Common myths about using AAC for children with Down syndrome:

1. Fear of natural speech development being impeded

The fear of AAC intervention becoming an impediment to speech is quite widespread. However, several studies (such as Millar, Light, and Schlosser) show that AAC does not cause impediment in the development of natural speech in individuals with developmental disabilities. On the contrary, children with exposure to AAC learn to use multiple modes of communication, unlike children with no exposure to AAC.

2. Fear that social skills won’t develop

Another common fear with using AAC intervention is regarding the development of social skills. How will the child learn social skills using AAC? This fear too is ill-founded — AAC as a multi-pronged model of communication uses modeling, practice and feedback to teach the child different language skills as well as social skills that are required to engage with people (for example, turn taking). Multiple studies have shown this to be effective specifically for children with Down syndrome, including the study by the Janice Light & Kathyrn Drager in 2010.

3. Concern that AAC cannot help tackle challenging behaviour

Sometimes, caregivers question the possibility of resolving challenging behaviours using AAC. On the contrary, though, device-based AAC systems can especially be useful in helping with handling challenging behaviour, by working on Functional Communication Training (FCT) with children. For example, caregivers may model with the child on using a specific AAC switch or symbol, to replace a challenging behaviour like hitting his head on the wall to call someone. Studies show that such methods have been effective with most children observed.

4. Concern that the child will be unable to communicate when the AAC device is unavailable

With advancements in technology, electronic device based AAC systems have become the order of the day. This often makes caregivers wonder if their child will be left stranded without any means of communication when he or she does not have access to the electronic device. Will the child’s communication become device-dependent? If AAC is properly introduced, this is not a major concern. There are many different types of AAC systems, including unaided and aided systems. While unaided systems usually include signs and gestures, aided systems include picture boards, communication books and electronic devices. If a child has no access to an electronic device based AAC system, and if they have been properly trained to use multiple modes of communication, they will not be left stranded: unaided systems, or other aided systems with similar visuals as the child’s device, may be used to communicate with the child.

In our experience, we have heard a lot of success stories of children with Down Syndrome using AAC. Do you have any to share? Leave us a comment!

References:

1. Effects of AAC intervention on communication and language for young children with complex communication needs by Kathryn Drager, Janice Light and David McNaughton, (https://pdfs.semanticscholar.org/4fde/36329edf21ce59bf0afb2a0f7adb10ff00cf.pdf)

2. Effect of early AAC intervention for children with Down Syndrome by Janice Light and Kathryn Drager  (http://aac-rerc.psu.edu/_userfiles/file/Light%20ASHA%202010%20%20AAC%20and%20children%20with%20Down%20Syndrome.pdf)

3. Millar, D. C., Light, J. C., & Schlosser, R. W. (2006). The impact of augmentative and alternative communication intervention on the speech production of individuals with developmental disabilities (Journal of Speech, Language, and Hearing Research, 49, 248-264.)

Parents of children with special needs, mostly struggle to, first, come to terms with the diagnosis, and then to deal with the associated challenges, including communication. But they are not alone. There are others who have been there and also helping other parents work on these issues.

In our initiative, World Through Their Eyes, we spoke to Akila Vaidyanathan, Founder, Director of The AMAZE Charitable Trust, Coimbatore and Founding Member of the Autism Society of India. She shared with us a list of tips that could help other parents, like herself.

Akila is the parent of Nishant, a 22-year-old with Autism and Apraxia of speech, who is an intern with AMAZE. She was working in the software industry, before Nishant received his diagnosis, after which, she trained herself with a host of courses, to understand autism better.

She did DSE Autism, MSc Applied Psychology and multiple international certificate courses like RPM, PECS, AT Tools, FIE and Applied Drama. With a passion for technology, she is always looking for innovative methods and solutions, that help persons with disabilities, improve their quality of life. She uses her vast experience to create awareness about Autism through various forums and media.

Tip 1: Let go of Denial and Blame

Usually, there’s almost an expectation from the parent, that the child will be something like the parent, especially when the child does something positive.

It is typical of a family to look at it as the gene pool being passed on. When a child has special needs, the family sees it as, “It can’t be. My gene pool cannot have a defect”. Often, there is denial and even blame, blaming each other or each other’s families. Often mothers feel they are responsible. Instead, they could begin by looking into the child’s strength, abilities, needs, and challenges.

Tip 2: All of us are Unique and Different

This leads to Akila’s second tip to parents!

Your children are not your children.

They are the sons and daughters of Life’s longing for itself.

They come through you but not from you,

And though they are with you yet they belong not to you.

–       Kahlil Gibran

Quoting Kahlil Gibran, she highlights the need to look at your child with their own purpose because each of us is unique and different. Letting your child be their own person is the best gift you can give your child.

Tip 3: Explore and Express!

Children with special needs probably learn using different learning methods, compared to how we learn. Hence they communicate in a way that is different from how we do. As simple and easy as it sounds, this is a whole new paradigm shift for a parent, and one that is needed! With this acceptance, the parent will allow the child to express themselves in their own ways.

Tip 4: Multiple Modes of Communication

Expose your child and allow them to respond to multiple modes of communication. These could include gestures, picture charts etc., which makes them less anxious to attempt speech. This might make them more willing to repeat words, which might have been more stressful earlier, because of the lack of acceptance. The child should feel accepted, even when they don’t use words to communicate.

Tip 5: Create Opportunities for Communication

Create opportunities for communication throughout the day. Don’t pre-empt or make it too easy for them to access everything in a way that requires no communication. Do it even if it means that you sabotage the environment, like hiding something or viewing things in smaller installments.  If your child likes chocolates, give it in smaller installments rather than the whole thing, at one go. This will make them ask for more.

Tip 6: Get your Hands Dirty!

Get on the floor and play with your child! This is going to help them understand another aspect of their life – Social Aspect. When the child watches someone else play a game, they learn to understand visually and anticipate something. It is a change in pattern. Though hard to explain, your child’s interpersonal skills start developing when you play informally with your child, through games or even silly interactions.

Tip 7: Be Interactive

Be interactive with your child to build reciprocity. Reciprocity between two people lays the foundation for social interaction. This lets the child understand that there is one more person in the room that they are interacting with. Once the child starts interacting, you can then expand on it.

Tip 8: Focus on their Strength

Your child may be processing one of their senses, more dominantly than the others. They may be using or focusing on the visual, more than the auditory or tactile senses or vice versa. How do we find this out? A child may stim with visual movements (visual channel) or hum all the time (auditory channel) seeking information. So observe the child’s sensory pattern.

Give inputs appropriate to their sensory pattern. Don’t block it (like humming or tapping) as inappropriate behaviour. You could use this drama-based technique for a child who is tactile. Take some cream and put it on your child’s face, and as you start doing a facial for your child, you can start talking to your child. You will have their attention because the tactile channel is open. The parents may not be experts in these techniques, but the parent usually knows their child’s pattern. Leverage it to enter their world!

Do you have tips that you would like to share with other parents? Let us know in the comments section below!

This week, we will look at ‘World Through Their Eyes’ using theatre. How does theatre help kids with special needs? Can it help or accentuate the communication process? Answering these questions and many more, we had a conversation with V. Balakrishnan, Founder and Artistic Director of Theatre Nisha.

V. Balakrishnan is an alumni of the National School of Drama (New Delhi), and is the Founder and Artistic Director of Theatre Nisha (Chennai), which has staged over 100 plays in the past 17 years. He has been using theatre as a tool to improve communication and combat learning disabilities for the past 16 years. He has directed over 200 plays, acted in over 150 plays and written 10 scripts. He was recently awarded the Fulbright Distinguished Award in Teaching 2017, completed his inquiry project on Theatre Necessities and Application: Role Play for Liberation from Indiana University.

Avaz: What is expected of you when you teach theatre to children with special needs? What kind of curriculum is used and what sort of engagement happens?
V. Balakrishnan: With special children, my work so far, has not been dictated by a curriculum given by the school. The curriculum has mostly been the one which I have developed. I do not follow a set lesson plan because each day is very different. We have to improvise quite a bit on the original plan. Broadly, we do have bifurcations of what we will work on; physicality, voice, reading and acting but what we end up doing changes everyday depending on how the children respond.

We work outdoors with the children in these schools. There are particular days when the children may be slightly more hyperactive or it may be too hot. In such cases, we look at what best needs to be done, than stick to a curriculum. Simply put, the curriculum is about making sure that the children are able to intuitively, impulsively and instinctively use their imagination and respond. The final line in any training for actors is to be able to respond honestly and this forms the basic title of our curriculum. What goes into forming this curriculum is something that changes with each school.

Avaz: What is your approach to building your own curriculum for these schools?
V. Balakrishnan: The broad guidelines are the same but the thought process is more or less developed only after meeting the children. We tailor-make the curriculum according to their needs. When we see children who have some difficulty with motor skills, we try to use a little more of silambam or martial arts. For children with a speech problem or shyness or some kind of complex, we use a lot of storytelling, voice exercises and speech exercises. With some children, we just play games. We just keep playing games till we reach a stage where we can start introducing drama theories and allow the children to understand the responsibilities of acting.

Avaz: What are some of the necessary building blocks (like motor skills) to be included in a theatre curriculum for children with special needs?
V. Balakrishnan: We make sure both the vocal and physical aspects are completely touched upon. We use movement, rhythm and tempo, speech exercise, introduction to acting concepts and making them explore small scenes using their imagination. Within these aspects, what gets stressed upon a little more than the rest, depends upon the group of children we are working with. Sometimes we understand that there is a speech therapist at work with the child. Then speech intervention is not required from us. We then work more on the motor skills.

We work more on something like silambam, an Indian martial art form. Silambam has had some remarkable results with children. It has really helped them because moving the fighting stick from left to right is quite a brain-challenging thing to do. It’s not easy and we have seen some really good results in children who started doing silambam. We have also seen some wonderful results in children who do storytelling, group exercises and probes that we do. It makes them understand social responsibility and work with group dynamics and leadership.
Avaz: What is the outcome that schools hope for, by engaging the students with theatre?
V. Balakrishnan: Quite frankly special schools do not have drama in their curriculum. It is a regular class, it is marked down as a period in the timetable but they don’t have to write an examination on it. All they have to do is to put up a performance at the end of the day. Although the objective is out there in the open, when the children come to us for the class, it is that we are getting ready for a performance. But what we are working on is trying to understand and identify children who have a problem with expressing themselves or with possibly understanding tempo and rhythm or with reading and so on. So we (the team) divide to figure out the challenge that the child faces and particularly like to work on those aspects. The final performance only becomes a huge excuse (may be) in order to be able to follow these interventions in order to finally make the child confident and believe in themselves.

Avaz: Often caregivers find it difficult to understand the child when he/she faces a certain challenge. What can caregivers do to better understand them?
V. Balakrishnan: Children always express themselves. When we are talking about learning disabilities, I don’t think that these children per se have any problems vis-a-vis children from “regular schools”. Learning disability is only the disability of our cerebral process to be able to indulge in one particular function with a block. So the child is not able to read or write or draw or do math. But this is something that occurs to every child, even you and I would have one aspect or more than one aspect where we totally suck. I might be tone deaf, but recognising tonality is not a requirement of social order. Hence it is not recognised as a learning disability whereas reading, writing and math is. Apart from that, it is not a disability. It is just one aspect and we are trying hard to make them do it. It is quite possible that a person can live happily without having to write or read but unfortunately it has become a norm in our social order. The only way we can survive is to be able to read, write and calculate. When it comes to children with autism and asperger syndrome, they do express themselves very brilliantly and clearly. Unfortunately, we are not able to read it because we are always trying to make them conform to responding in a way that we think is correct. We are trying to teach them how to smile, laugh, show anger and distaste, while they have their own way of doing it. I think what we really need is some kind of space where these children can be free in their environment and not be taught to conform to a way of living, trying to make them be like us. I think it’s more important to be the way they are but that requires so much of compassion on the part of the entire world and I don’t know if that’s possible.  

What do you think of theatre as a form of communication? Leave us a comment!

There seems to be an inherent stress to view the world in a fixed way. This exerts excessive pressure on people with special needs to respond to the world only in ways that others are familiar with, than through modes of expression that they are comfortable with.

There is a growing need to change this to make the world more inclusive. With that in mind, Avaz has launched – World Through Their Eyes, an initiative to create awareness about viewing the world through the eyes of persons with special needs.

We will bring to you different and unique perspectives of persons with special needs and trendsetters in this space, as interviews, ready-to-use strategies, infographics, research and much more over the course of the next few weeks.

Join hands with us in sharing this initiative and spreading more awareness about looking at the World Through Their Eyes!

If you would like to be a part of this initiative, let us know in the comments below so that we can get in touch with you.

This week, Avaz is launching its World Through Their Eyes initiative on creating more awareness about viewing the world from the perspective of people with special needs.

We are kick-starting this initiative with this infographic on why pictures communicate better than words with some who face challenges with words. This infographic explains how words and images are processed differently with people facing challenges with words.

Hope you find it useful and share it with others who might find it useful. Leave us a comment below if you would like to be a part of this initiative.

Language learning can be facilitated through simple and effective strategies. Let’s look at two of those strategies – Expansions and Extensions and how they can be combined with different aspects of pragmatics to facilitate language learning. These strategies work well with children who communicate using a few words or are at an early sentence level, since it is predominantly based on communication partners’ responses to their child.

Expansions: Expansion is the process by which you not only repeat what the child says, but also add missing words to make it more grammatically correct. Try not to rephrase the phrase dramatically, but simply hone the statement to make it more robust.

For example, if the child says “Want More” you can model something like “Want More JUICE” on the child’s AAC system (assuming the juice is in the context of the conversation). Or if the child says “bike”, you say “Yes! It IS a BIKE!” (It helps to use different tones and stresses on each word appropriately, to catch your child’s attention).

There are two things at play here.

1. By repeating and expanding the child’s language, you are staying within the realms of responding without directly “correcting” him/her.
2. By repeating- you’ve acknowledged that the child successfully conveyed something to you and will be motivated. Step it up very gradually i.e. expand using more words, bend words (Ex: go- went) as you go along. And keep modelling!

Extensions: To extend a child’s utterance, we simply respond to the child’s utterance in a conversational way, providing a little more new information, that is related to what the child has to say. These are similar to expansions, but in this case, you not only expand the child’s language, but also add some additional information as an extension. For example:

•      If the child says “Dog run!” you could say, “Yes, the dog is running. He is running fast.”
•      If the child says “Red block.” You could say, “Yes, you have a red block. The red block is shaped like a triangle!”
•      Another example, if the child were to say “yellow doggy” you could say, “Yes you see a yellow doggie! The yellow doggie is big and fluffy.”

Expansion and extension seem to work best with children who are using words/phrases or small sentences to communicate. You might not want to use these strategies with every word the child communicates. The hardest part about these strategies is that they require the communication partner to wait and respond to a child’s language instead of directing it. Another thing to keep in mind is to respond to the communicator’s intent i.e. replying to their question or request – and not in a manner of commenting such that the conversation does not go any further. 

Are there any favorite ideas that you use for expansion and extension? Share it with our readers – by adding them in the comments!

Sources: http://www.playingwithwords365.com/strategies-to-help-your-child-talk-using-expansions-and-extensions/

http://www.talkingkids.org/2013/03/using-expansion-and-extension-to-grow.html

PrAACtical AAC’s blog on Expansion

Happy (belated) Valentine’s Day to you! Here are 3 tips that we followed this Valentine’s Day to make it the absolute best!

Tip 1: Acknowledge the love in your life
We at Avaz, feel loved and motivated when we hear from people who use Avaz with their loved ones. So, we picked two people as our Valentine this year. These two individuals, with their words of love and motivation, made our Valentine’s day very memorable!
Tip 2: Express gratitude for the love in your life!
This is a follow up to tip 1! Express your gratitude to the people who love you, for the love they share. So here we are, expressing our sincere gratitude to all of them, for trusting in us and continuing to use Avaz. Here’s their message to us and our messages to them!

“My wife had a severe stroke a few years ago and her Speech Therapist downloaded your APP together with other similar apps, to provide steps in her rehab to improve her speech and communication. After a period of 6-9 months she made sufficient progress and improved beyond the need for any of the APPS. Currently my wife is still having speech therapy; her communication skills are much improved. There was a time when it seemed that it may be necessary to rely and subscribe to each of the Apps. “Fortunately” this was not required.

I have to recommend you and your team in making such a product available; the positivity that this gave my wife is immeasurable and has helped in her rehabilitation. (It) helped tremendously in recognizing words and sentences and the structure. At times my wife used the App to either ask a question or respond if she was unable to remember how to say a word or sentence.” – S.M

Thank you! Your positive words are immeasurable to us. Thank you for trusting us to be a part of your wife’s recovery. Wishing you and your wife a happy Valentine’s Day and sending you both our love! – Team Avaz

“My daughter is a 11 yr old child with Down Syndrome, PDD and is nonverbal. We have always had to deal with the frustrations of her not being able to communicate her needs/wants. As frustrating as it was for us as parents, it was ten times more frustrating for her.  We were reluctant to purchase the app because she had an Augmentative communication device when she was younger and neither she nor I found it to be “user friendly”. I did a lot of research on both Avaz and a competitor and found tons of positive reviews on both. I did come across many people who said that Avaz was just as good as the costly competitor and since I had reservations I went with the least expensive. This ultimately has been a decision that is worth it’s “weight in gold”. My daughter has nearly mastered the navigation, so much so that one day she brought it to me to show me she wanted Taco Bell for lunch. This made me cry. My child had a voice for the first time. Thank you for being the one to give my daughter that “voice” – A.K

Thank you for trusting us to give your daughter that voice. Your trust means the world to us. Thank you for all the love and this absolutely heartfelt message. Thank you for making our Valentine’s Day so special! – Team Avaz

Tip 3: Share and spread the love with others you love

We felt absolutely overwhelmed and grounded receiving kind words from our users. That said, our experience wouldn’t be complete without sharing these endearing words, with those close to us, and you are one among them too! You should also know that you are absolutely awesome with who you are and what you do. Thank you for continuing to be a constant part of our lives and making our Valentine’s Day special.

That was our Valentine’s Day! What about yours? We want to know all about it too! Leave us a comment! We are waiting!

Communication can predominantly be split into two aspects – the act of speaking, and the setting in which it happens. We are going to be looking at the latter in this blog post.

Communication changes with social settings or context. Let’s take two examples. While talking to a child, our voice mellows, we speak slower and we use a different set of words to convey the same meaning. Similarly, if a person that we are talking to constantly looks away or responds in monosyllables, we decide that the person is bored and change the topic of the conversation. Now, what gave that away? Who taught us to do that?

In both of these examples above, there is a certain sense of the social setting, age/mental maturity and physical response. This insight of the social setting in which communication happens is called pragmatics. Acquiring pragmatic skills is difficult for both- a typically growing child and a non-typical child, while they differ at the intensity and speed of acquisition.

Pragmatics that governs our day-to-day communication includes three different aspects namely:

Using language to convey different types of messages:

• Greeting– Hi, Have a nice day, goodbye etc.
• Requesting information– What is that? Where are you going?
• Requesting for an action – Can you give me a cookie? I want a cookie.
• Refusing/protesting – Stop the music. Don’t touch my toy. I don’t want to eat.
• Promising – I am going to play your favorite song.
• Informing– I am making a sandwich. We are going to paint this wall.

Changing language according to the needs of a listener or situation:

• Presenting information (background details, facts) to an unfamiliar listener: Hi, my name is Randy. I’m here to meet Sue.
• Presenting information (background details, facts) to an familiar listener: Hi Sue, I read the storybook you gifted me. I loved it.
• Speaking differently depending on the listener: a small boy speaking to a friend of his age vs an adult- “Joe, give me a cookie, please.” vs “Mrs. Stevenson, could you please give me a cookie?”
• Speaking differently depending on the location: speaking differently in a classroom than on a playground. “Hey Greg, could you please pass me a copy of the worksheet.” vs “Greg! Pass the ball.”

Following rules for conversations:

• Introducing topics of conversation: “Yesterday I went to the movies with my sister…”
• Staying on topic: “Oh, you drew a horse? I drew a dog!”
• Rephrasing when misunderstood: “The time is quarter to five. I mean four forty-five.”
• Using verbal and nonverbal signals: Nodding to agree, pointing the index finger to identify etc
• How close to stand to someone when speaking: Explaining physical space, appropriate touch etc.

Some people may face challenges with respect to adhering to the pragmatics of communication. The main problems include responding with the wrong or inappropriate words or action, give monosyllable or one word responses or talk about things that are irrelevant to the context of the conversation. Often children facing these challenges may be facing communication challenges.

When faced with such communication challenges (either before or after diagnosing the issue), how do we handle it? How can we help the child in such circumstances? In the next few articles, we shall explore the integration of the different pragmatic aspects in a way to resolve these issues. These are many simple and successful techniques to help the child be effective in their communication.

Watch this space for more activities on pragmatic skills.
(Source: http://www.asha.org/public/speech/development/Pragmatics/)

It seemed like 2017 only yesterday. It is February already! We wanted to welcome this month of love by sharing with you something essential to the expression of love – the different components of language. After all, most often, it is language that aids us in the expression of love.

So we have put together an infographic explaining the different components of language  – Pragmatics, Semantics, Syntax, Morphology & Phonology, integrated as a whole.

What do you think of this representation? Did we miss something? Leave us a comment below.

Happy Thanksgiving! The entire Avaz team would like to express our gratitude and thank you for being a part of the AAC family. 

Thanksgiving could be overwhelming, in many ways for a lot of us – hosting, planning food! But let’s make this holiday an enjoyable one for the child. Let’s break it down and look at ways to tackle each part to ensure that the child has a good time, without distress or being overwhelmed.

Changes in the surroundings:

• Venue– if you are hosting, give the child time to take in this new temporary re-arrangement and do this a few days ahead. Create a designated “my spot” for the child, with their toys and comfort items. If you are going to a different place, get the child accustomed to it, by showing pictures and talking about the place.
• Clothes– stick to a familiar and comfortable outfit for you and the child.  If you want to try new holiday wear- get the kid to wear it a few times before, make sure it is familiar and comfortable.
• The holiday itinerary- Even though this is a holiday, try and stick to the usual routine as much as possible- like play time, meal time, nap time. Do the 2 o’clock dinner too, but as an add-on to the usual routine.
• Setting expectations and the holiday mood –  Have some fun story sessions of how you are going to spend the day, using visual aids – e.g. car activities on the drive to the venue, whom you are going to meet, what you are going to eat, the parade on the television etc.

People:

• Faces– Show the child a lot of pictures of the family and create an excitement about meeting them all. It helps jog their memory, as well as prep to meet the newer people.
• Greeting– One recommendation would be to ask a few people in advance to wait and greet one-on-one, once you settle in.
• Volume– Pack your noise cancelling headphones! You never know when the party would liven up, so be conscious of the noise levels and use them when required.
• Conversations– it always helps to role-play greeting, answering questions and the dinner table talk with the child before the holiday. You can also prep your relatives by telling them the latest topics that interests the kid.

Food and the dining table:

• No harm in having some chicken nuggets– Sometimes, it just helps to bring food they usually eat and are comfortable with, especially if your child is a fussy eater. You can always top off the familiar with some holiday specials.
• If you have a food-enthusiast in the house– Some kids tend to get distracted with the overwhelming options and may not know when to stop snacking or eating. You can do the plating and serving at the kitchen rather than putting the dishes out on the table.
• Don’t forget- at every step to give the child a lot of positive feedback! In slow and small doses, your kid got to experiment and have fun. Appreciate their efforts – take notice, give him hugs and, kisses. And remember- if they are overwhelmed and you have to take a break, it’s okay. Or if they are sitting with their toys the entire time- that’s okay too. That’s their way of celebrating the day!

Happy Turkey Day, you all!
References:

https://www.autismspeaks.org/blog/2017/11/14/autism-and-thanksgiving-how-cope-feasting-and-hubbub 

https://themighty.com/2015/11/tips-to-make-thanksgiving-more-comfortable-for-kids-with-autism/

Halloween is around the corner! And it is the most eagerly awaited holiday for children. This is the time for creating lasting childhood memories and flaunting costumes.

If your child falls in the autism spectrum, the evening could cause anxiety over unfamiliar looks, places and social interactions. But there is no reason why they can’t participate in the festivities (along with their AAC systems). With some preparation from our end, we can make it happen for our children!

There are a few ways to ease the child into being a part of this night of celebrations. Let’s tackle the big challenges in do-able ways:

One of the questions that we frequently receive from speech therapists after these webinars is “how do I to get parents/teachers to be more comfortable using AAC?”.

Communication partners who are comfortable with the child’s AAC app can model language at appropriate times for the child and no learning opportunity gets wasted!

In Avaz, we have built an entire Dashboard module for this specific goal. Communication partners can get fluent in using Avaz by practicing to model sentences in the Dashboard module. They can choose a particular context and select sentences, and Avaz would guide them on how to create them. See how this feature works here

We have been collecting stories of AAC usage around the world and trying to figure out what are the factors that influence the success of an AAC intervention.

One of the influential factors that we have heard in anecdotal reports from our customers as well as from leading researchers in the field is – giving continued access to an AAC system.

Ideally, we want AAC users to have their communication device with them. Always. However, this is not feasible in many situations for a variety of reasons. For example, the device could run out of charge or the AAC user is at a beach or at a water park. In all these situations, we want to give continued access to their communicator and offer the power of communication. But we are unable to.

We built a feature into Avaz to address this exact problem that our users face.

It’s October and it is a special month at AVAZ. Our goal is to have every voice being heard and give our children the opportunity to share every thought! We have many exciting offers planned for you to celebrate this month!

It’s back-to-school time already! Are you excited? We sure are. It’s a new year, full of exciting new possibilities. And we can’t wait to show you some of the cool new stuff we have been working on this summer.

Here are some of them:

• We all know how important modelling is. So, we’ve introduced a feature by which you can learn to model a word using the Search bar in Avaz. This feature will help you remember how to find that word easily. Catch a sneak peek here – https://youtu.be/XoVToM3uCqw.  (Hat tip to Kate Ahern for this suggestion.)

• You can now use AirDrop to transfer your student’s vocabulary seamlessly across devices. (Huge shout out to the users who wrote in requesting for this.)(Psst… and this is just the start!)

All this and more is part of our effort to make Avaz more intuitive to use. So that you and your students get the most out of the time you spend with Avaz.

Here’s to the new school year bringing a lot of joy, inspiration and learning for you and your students.

With love,
Team Avaz

You can download the latest version here – Avaz US Pro

One of the great perks of working at Avaz are the heartwarming stories that we get to hear from our customers. These stories range from a therapist telling us about the breakthrough that they had with her student or from a parent who is beside with excitement to hear their child speak using Avaz.

Recently we received one such story, all the way from Bucharest, Romania. Simona, has been using Avaz for the past few years with her daughter Sara. Simona translated the entire Avaz vocabulary into Romanian and personalized it so that Sara could use it to communicate. How cool is that! Last week, Sara used Avaz to say her first poem at kindergarten. Simona added the poem on Sara’s iPad and she just needed to learn the steps to say it.

Below is the video of the classroom rehearsal!

Kudos to Sara and Simona! Do you have a similar story? Share it with us! It motivates us to push ourselves further.

In the run up to the World Autism Awareness Day (April 2nd),  we asked people to tell us what is the ONE autism myth that they wished to dispel. As the replies from around the world started pouring in, we realized that there is a lot of work to be done with respect to raising Autism Awareness.

As a second step to our initiative, we created the below poster that collates autism myths from around the world. What do you think of this, let us know by leaving a comment.

We request you to share it with your friends & colleagues. No occasion is better than the World Autism Awareness Day!!

It is widely believed by researchers that the primary reason that kids with autism find communication and language complex, is because of so-called “processing issues”. When a child is exposed to language at a volume and rate which typically-developing adults are comfortable handling, the child would find it immensely complicated to “decode” these words into meaning. This is true of both spoken language and written language, though the latter is somewhat less stressful (for literate children) because they are able to take their time to decode it.

We believe, as a matter of faith, that one of the end-points of AAC(Augmentative and Alternative Communication) is the development of literacy, i.e. the ability for a non-verbal child to read and write.

Well-designed AAC is more than an assistive technology — it is also an educational technology. In other words, AAC can (and should) provide a way for a child to transition from being a picture-user to being a text-user.

Some parents, and even a few therapists, sometimes question the assumption that a non-verbal child is capable of literacy. We take inspiration from David Yoder’s quote — “no child is too anything to be able to read and write”. Both systematic research as well as anecdotal evidence has shown that even children with very high levels of disability can be taught literacy.

Like every Autism Acceptance week, this time round too, we’re running some great promotional

offers on our Pro apps. Avaz Pro in English, Spanish and Italian are all available at 50% off until

the 10th of April.

If you were looking to buy new licenses for your school, or if you know someone who you think

should experience the same awesomeness of Avaz that you have, now’s the best time to get a

great deal on these products.

As a special gift to you in support of Autism Awareness Month, we’re offering 50% off on Avaz apps:

• Avaz – Pro – 50% off – $149.99 – $74.99

o Download from iTunes here: http://bit.ly/1atGoya

o Download from Android here: http://bit.ly/1CDKdKe

• Avaz – India – 50% off – $109.99 – $54.99

o Download from iTunes here: http://bit.ly/1CDKexN

• Avaz – Italiano – 50% off – $299.99 – $149.99

o Download from iTunes here: http://bit.ly/1bVqld0

• Avaz – Español – 50% off – $149.99 – $74.99

o Download from iTunes here: http://bit.ly/1BZ9yLb

This limited time offer is only valid until April 10, 2015!

Give your loved one, the best gift ever

Developing communication skills helps children with Autism live fuller, richer lives!

But how can you make your child’s therapy sessions go farther, so those skills develop even more? Presenting Avaz Together, world’s first iPad AAC app for home use, designed to help your child learn faster everyday.

Join us on Apr 2nd ( 3 pm – 4 pm PST) for a webinar explaining how Avaz Together helps you put your child on a fast-track of communication. Here are some of the things we’ll discuss:

• Why is communication the most critical skill for a child with Autism?
• Integrating communication-opportunities in your child’s daily life?
• Modelling and why is this critical for the child’s communication development?
• Measuring the vocabulary improvement of your child

Register for the webinar today!!

Introduction:

Twitter chats, sometime known as tweet chats, occur when a group of people tweet about the same topic using a specific tag, known as hashtag (#) that allows the conversation to be followed online. The chats take place at a specific time and topics are defined in advance. We use the hashtag #avazchat for our twitter chats.

Getting Started:

You’ll need a Twitter account to join a chat. To sign up, visit twitter.com. There are several ways to view a chat as it is happening:
• Go to twitter.com and type in the hashtag you want to follow (e.g., #avazchat) in the search bar. You will see a list of every tweet that uses the hashtag, with the most recent tweets on top.
• Third-party tools (outside of twitter.com) are also available. Tweetdeck and Tweetchat are two options.

Format:

Tweet chats typically last for 60 minutes. A moderator will start the chat to introduce guest speakers and provide an overview of the agenda. A specific amount of time is allocated to each topic, followed by an open mic for follow-up questions and idea sharing. Participants are encouraged to submit questions prior to the event by e-mailing to sally@avazapp.com or by directing the question to our twitter handle @avazapp and by using the hashtag #avazchat on twitter. Due to time constraints, not all questions may be addressed during the chat.

Etiquette:

• Stay on Topic. When you join a chat, be aware of the topics being discussed. If you ask a guest or moderator a question, stay on topic. Don’t use the hashtag unless your tweet is on topic.

• Use the hashtag. If you ask a question or respond to someone in a chat, always include the hashtag so everyone can be in on the conversation. Services like Tweetchat.com automatically add the hashtag for you.
• Share. Share tweets from within the chat with your network by retweeting or by commenting. Let your followers know you’ll be participating in a chat advance so they know you’ll be active during the time period. (They might also want to join the chat.)
• Don’t be a self promoter. Don’t use someone else’s tweet chat stream to market your product or services.

Policy & Terms:

Participants of the Avaz App Twitter Chat may not post or link to any content that is false, defamatory, inaccurate, abusive, harassing, obscene, sexually oriented, threatening, invasive of a person’s privacy, or that would infringe on any third party’s rights (including copyrights and other intellectual property rights) or content that otherwise violate any applicable law, rules or regulations. Any information that you post becomes publicly available and may be viewable by any visitors to the site. Participants must also agree to twitters Terms of Service.

If you are a therapist, and have been checking your calendar and thinking that it‘s time to evaluate new AAC options

Or

You are already using Avaz, and would need a brief refresher course, then please join us for a FREE demo of Avaz on 26^Th Feb 2014, 3 PM – 4 PM PST. Choosing the right AAC app is a conscious decision, and we’ll cover the following items to take you through Avaz and explain how it can help children communicate:

• Customize Avaz for each child’s needs
• Learn how Avaz helps reinforce learning
• Discover Avaz features for children who need consistent motor patterns
• Find out what makes Avaz child-friendly

Click here to register for the webinar.

Topic: How to get schools to educate your child with Autism, so they are ready for employment

Time: Join Us on 26th Feb, 20:00 hrs GMT

About our Guest:

Debra Ruh is an advocate for the rights of persons with disabilities and founder of Ruh Global Communications.

Debra has provided global leadership to governments, corporations, NGOs and DPO’s (Disability Persons Organizations) supporting research projects, DPO outreach, policy and standards initiatives with the public and private sector. Debra has worked with United Nations agencies and countries to help implement the CRPD.

Debra founded TecAccess in 2001 and merged it with another firm in 2011. TecAccess was an IT consulting firm that employed persons with disabilities and helped businesses create accessible technologies for people with disabilities.

Debra is active on social media and blogging on Twitter, Facebook, LinkedIn, G+, Tumblr, and Pinterest her Twitter handle is @debraruh. Debra is the Co-Founder of www.AXSChat.com a Social-chat website, on accessibility and disability inclusion.

Not every mother would know how to decipher “dah der peas”. But that was what Alex, a child with speech difficulties, was saying from the back of the car one morning when his mother was ferrying his younger brother Andy to school.

We at Avaz are having a great new year!! As part of our efforts to make every voice heard, we had a webinar on ‘Demystifying AAC’ on January 17.

Parents, special educators and speech therapists like you enthusiastically took part.

We tried to address the issue of how jargon was clouding the AAC space and ensured that voodoo around AAC was cleared.

If you are feeling sorry that you missed it, don’t be. Here’s a recording of it. Also, we will be coming up with more webinars in the future. Stay tuned.

We had posted the below question on our FB-page and got some great responses.

The answer to the question is Option ( C ).

{Disclaimer: The ‘correct’ answer varies according to the communication level of the child. We would suggest you to consult the child’s therapist for the best advice.}

Extension is similar to expansion, but one step more, where you introduce a new concept that is related to what the child has just said. It is preferable that you introduce only one concept at a time, which makes it easier for the child to digest. For e.g. if your child says “doggie tail” , you can extend it with “Yes! The doggie’s tail is fluffy”. Or if your child says “red flower” you can extend it with “Yes, the red flower is soft”! If your child says “doggie bark” you extend it with “Yes, the doggie is barking, he is hungry.”

Look out for words that your child is uttering and grab that opportunity to build on what he has just said – to expand and extend his language. Extension adds to his language and vocabulary in a natural way. These strategies make communication far more engaging, since the child is encouraged by seeing the parent respond to his statement and this tends to initiate and sustain a conversation.

Expansions and extensions are techniques that parents tend to under-utilize. These strategies not only aid in building the child’s vocabulary, but research has shown that it also helps the child build longer and more meaningful sentences.

Specialized AAC(Augmentative and Alternative Communication) jargon makes AAC decisions difficult. Many of the questions that researchers have studied over the last few years are loaded with complex terminology. For example:

• Is a vocabulary based on core words different from a pragmatically oriented vocabulary?
• How do we deal with multi-graded vocabulary that a child has to grow through? Which color-coding works best for AAC vocabularies? Is it possible to combine high-tech and low-tech vocabularies for the same child?
• Our webinar demystifies this terminology and the process of selecting or building an AAC vocabulary based on the latest research findings.

We are back, with the Avaz Communication Challenge!!

Johnny is a 7-year-old and communicates in 1-2 words.

He returns from school and shows you a fish he made in crafts class. He uses his AAC device to say “BIG FISH”. You expand his utterance with “Yes! This is a big fish”. Now, what is the best way to extend this communication?

Leave a comment, with your answer – Option (A) or (B) or (C).

A few days back, we posed the following question to our Facebook community. We got some great responses.

Our answer to the question is (B).

We asked this question because we wanted to explore the topic of ‘Expansion in developing language’. First, a disclaimer. The ‘correct’ answer varies according to the communication levels of the child. Consult the child’s therapist for the best advice. Having said that, here is our rationale for the choice of the answer.

Expansion is a technique that helps develop language. It is useful for children who are emergent communicators. Expansions are comments that add syntactic and semantic details to incomplete phrases, to create a simple sentence that is grammatically correct. To expand your child’s comments:

• Use the same words that your child has used and in the same order
• Maintain the same meaning
• Add the missing words to complete the simple sentence that is being conveyed

E.g. If your child says ball red, you can expand it by saying, “The ball IS red”. Or if he looks at a dog and says big doggie, you can expand it with “HE IS a big doggie”. You are building his language without correcting him directly. Expansions have been shown to increase the probability that the child will spontaneously imitate the adult’s expansion of his utterances.

In general, most children hear approximately 1,200 words per hour, and they learn language by listening to the words they hear every day. It’s difficult to imagine how many times a typical one-year-old hears a word like ‘more’ before learning to say it. Children develop language and speech by hearing sounds, morphemes, words, and sentence structures repeatedly, and these repetitions sometimes happen 10,000 times before children are able to generate them on their own.

Augmentative and Alternative Communication (AAC) users need that same type of exposure to their AAC language systems before we should expect them to ‘speak’ AAC. If a child is using an AAC device, then his or her parents or caregivers also need to work continuously to model how the AAC works, so the child is immersed in the language. Over time, children will be more likely to observe and mimic what they’ve learned. The more you use the AAC, the sooner your child’s language skills will improve.

We asked the below question to our FB-community and we thank our fans for coming up with answers and making the discussion lively.

The reason we posed this question was because it throws up a number of interesting subtleties in AAC strategy, which every parent should know. First a disclaimer that the ‘correct’ answer depends on the child, and you should consult the child’s therapist for the best advice.

It has been a wonderful month for us so far, and we conducted our first webinar last Thursday. Special educators and SLPs participated from around the world. We talked about the various elements of Augmentative and Alternative Communication (AAC) and how Avaz addresses them.

We started with a quick introduction to AAC, and about its importance in the broader context. Participants took a quick tour of Avaz to learn about its features, and the webinar ended with a great question and answer session.

Our webinar participants shared interesting ideas regarding communication pragmatics,language acquisition via motor planning (LAMP) etc.. Some of the participants were very interested in the Track Session feature and wanted more details, so they could make the most of it.

If you weren’t able to attend, here is a link to the webinar. Check it out and share your thoughts with us.

Also, stay-tuned for news on our upcoming webinars.

I received a heart-warming email today from a mother whose two sons, both with autism, have been using Avaz for nearly a year now. Her email had one detail in particular which will probably remain with me for a very long time. She spoke about her elder son — let’s call him Harry — who is seven years old, non-verbal, with sensory issues and delays in fine-motor and gross-motor skills. Harry hardly initiates speech, so his mother was often left wondering what he was thinking about. But a couple years back, she and Harry’s speech therapist made an astounding discovery. They realized that Harry had taught himself to read, and he is now able to communicate — autonomously and, to a large degree, independently — by using Avaz.

Harry’s mom went on to write about all the wonderful instances where he’d used Avaz to astound his family, his therapist, and his baby-sitters. But I think the most important takeaway from this email is a validation of an AAC guideline that we may have heard about but don’t put into practice often enough. And that’s the advice to presume competence. Presuming competence is so important that I think it deserves to be called an AAC mantra. And it’s probably a good idea for you to repeat this mantra to yourself five times before you start your day with a child: “I must presume competence. I must presume competence.”

I was at ISAAC 2014 in Lisbon earlier this year, and the highlight, for me, was the research symposium after the conference. This event included a hundred or more researchers in AAC from all over the world, who came together to discuss some very important cross-domain topics in the field. I had the good fortune of sitting next to Signhild Skogdal from the University of Stavanger in Norway. Signhild spoke to me very passionately about how we are always using the term ‘AAC’ to refer primarily to speech and language, whereas we should be focusing on the “C” — communication — more often. Talking to her, I came to understand a very interesting distinction between those three words we use rather carelessly while working with children with complex communication needs: speech, language, and communication.

What is speech? Speech is the common term that we use to refer to what’s known more technically as articulation. In other words, it is the process of physically expressing a sequence of sounds, which, through the process of hearing, convey a message. So, speech is definitely a physical process involving the muscles of the respiratory system and the vocal tract, or, in the case of people with speech disabilities, a speech-generating device or app like Avaz.

What is language? Language is shared meaning — “an agreed-upon set of symbols that enable people to interact and communicate with each other”¹. The core property of language, then, is its symbolic nature — our ability to name and remember names of objects and actions in the world around us, so that we can ‘talk’ about them with each other. The names, by themselves, are more or less arbitrary. For instance, the object which we call a door, by any other name, would still open and close. But language is a way to put these words together to create meaning. Language is either sound-based (for verbal communication) or gesture-based (like sign language); and for many people with autism (and other disorders), it could be picture-based, too.

And what about communication? Communication is a medium of interaction between people that allows them to direct the emotions and actions of others. We communicate to convey information, to get people to do things, to express approval or disapproval, and to express our needs and wants. In short, we communicate so that we are able to live socially. All social creatures must communicate with each other — whether by the grunts and roars of tigers, or by the scent trails of ants, or by messages written on Facebook by human beings.

Date: 10-Nov-2014

Kære Avaz – Dansk Brugere,

Vi har netop udgivet en gennemtestet stabil opdatering af Avaz Dansk i app-butikken – version 3.2.1 og det er sikkert at opdatere. Den seneste version af denne app vil give mange flere folk som har specielle behov, muligheden for at opleve og drage fordel af Avaz.vaz Dansk er gået fra at være en betalt app til en gratis app, med mulighed for in-app køb. Dette skift har dog givet visse af vores brugere nogen problemer. Vi beklager meget, hvis du har oplevet nogen problemer i forbindelse med denne opdatering.

We’ve had a very exciting October. We attended the “Closing the Gap” conference in Minneapolis. We released Avaz Spanish. And we have been working on some exciting new projects. It’s all hush-hush for now but do watch out for more announcements.

This Nov 13, we have a one-hour webinar ( 3 pm – 4 pm, PST) on the various aspects of Augmentative and Alternative Communication, and how Avaz addresses these.

Hello! If you were wondering why this sudden burst of Spanish, we have news! We just launched Avaz Spanish. Partly because we love saying Hola to each other, but primarily because we received a lot of interest from the Spanish-speaking populace.

Avaz Spanish comes with a vocabulary of 5000+ words that has been localized to Latin American Spanish. For instance, you will find that in categories like food, restaurants, sport, religion etc the words are specific to Latin American culture. More of football, less of baseball.

1. The promoter is: Avaz Inc. whose registered office is at Stanford Financial Square, 2600 El Caminao Real #403, Palo Alto, CA 94306
2. Employees of Avaz Inc. or their family members or anyone else connected in any way with the competition or helping to set up the competition shall not be permitted to enter the competition.
3. There is no entry fee and no purchase necessary to enter this competition.
4. Closing date for entry will be 17-Oct-2014. After this date the no further entries to the competition will be permitted.
5. No responsibility can be accepted for entries not received for whatever reason.
6. The promoter reserves the right to cancel or amend the competition and these terms and conditions without notice in the event of a catastrophe, war, civil or military disturbance, act of God or any actual or anticipated breach of any applicable law or regulation or any other event outside of the promoter’s control. Any changes to the competition will be notified to entrants as soon as possible by the promoter.
7. The promoter is not responsible for inaccurate prize details supplied to any entrant by any third party connected with this competition.
8. No cash alternative to the prizes will be offered. Prizes are subject to availability and we reserve the right to substitute any prize with another of equivalent value without giving notice.
9. Winners will be chosen by the staff of the Promoter. The decision of this team is final and conclusive in all circumstances and no correspondence will be entered into.
10. The winner will be notified by email/on social-media platforms within 28 days of the closing date. If the winner cannot be contacted or do not claim the prize within 14 days of notification, we reserve the right to withdraw the prize from the winner and pick a replacement winner.
11. The promoter’s decision in respect of all matters to do with the competition will be final and no correspondence will be entered into.
12. By entering this competition, an entrant is indicating his/her agreement to be bound by these terms and conditions.
13. The winner agrees to the use of his/her name and image in any publicity material.
14. Entry into the competition will be deemed as acceptance of these terms and conditions.
15. This promotion is in no way sponsored, endorsed or administered by, or associated with, Facebook, Twitter or any other Social Network. You are providing your information to Avaz Inc. and not to any other party. The information provided will be used in conjunction with the following Privacy Policy found at https://www.avazapp.com/privacy-policy/

The Avaz team is eagerly looking forward to next week.

On Monday, we fly to Minneapolis for the 32nd Closing the Gap (CTG) Conference – one of the best and most practitioner-driven Assistive Technology conferences in North America. This yearly conference provides a comprehensive examination of the recent developments in assistive technology for use by persons with disabilities and professionals who work with them.

This year’s conference will cover a broad spectrum of topics as it is addressing all disabilities and age groups in education, rehabilitation, vocation, and independent living. CTG typically sees a balanced mix of participants comprising SLPs, Occupational Therapists, AT Consultants, teachers and parents.

The Avaz office is usually a noisy place – whether it’s the engineering team discussing new ideas and new features, or the customer relations team discussing feedback from users, everyone has an opinion and everyone freely airs it. But on October 1, the office was quiet.

A synthesized voice broke the silence. “Happy AAC Awareness Month.”

This was followed by a series of synthesized voices – “Thank you”, “Wish you the same”, “To you too” and so on.

On September 30, the entire team received an email from our marketing team,

“October, as we all know, is celebrated as the International AAC Awareness Month.

In the true spirit of the month, let us use only AAC devices to communicate tomorrow (Oct 1).

Let’s use Avaz for all communications within office. Even if you have to ask any of us for a pen, you will have to use Avaz. “

Being the parent of a child with special needs is challenging. Add lack of communication, it can be frustrating and heart-breaking. Imagine seeing the crayon you want to use across the table, it’s the perfect color for your picture, yet you can’t voice your need. A pain in your body that makes you feel ill, or something as simple as wanting a glass of water becomes an internal stress because you can’t say what you need. People with communication difficulties have the daily challenge of having their voice heard.

As we head into October, the official month of AAC( Augmentative and alternative communication) awareness, we think of how far we have come with AAC. Technology is moving fast. Increased awareness about AAC and the availability of AAC is a gift to individuals with communication challenges. It is also a tremendous help for the parents of children who lack communication. Currently, assistive technology is becoming more advanced, easier to use, and affordable. Having access to AAC will increase independence, heighten education, create opportunities for inclusion, and broaden learning and life experiences.

September has been a busy month for our developers at Avaz. The next version of Avaz US will be out in mid-October and we are super-excited about the new features in this version!!

Here are two of our favorites:

• Graphic UI for Track Therapy: Until now you were able to view only text reports of the therapy sessions you were tracking. In Avaz 3.3, apart from a sleeker display of the report itself, you will see analytics of the therapy sessions with graphs measuring mean length of utterance, percentage of core words used etc as well, thus giving you a better insight into the child’s progress.

Avaz has been on the App Store for 20 months and we have had tremendous response so far from our customers. A big heartfelt thanks to the people for believing in us and contributing to our success till now.

We have had 2 major updates and several minor ones to improve the app based on customer and expert feedback. The big news is that we will now be shipping with voices from IVONA. IVONA voices have been consistently ranked the best text-to-speech quality in several independent studies, and we are glad to be one of the first AAC vendors to be supporting these wonderful voices.

The other important feature we introduced in our latest version is word morphology, brought to you with the support of Ultralingua. We’ve worked hard to make morphology very user-friendly and accessible, and from the feedback we’ve received so far, many Avaz users have been able to form more complex utterance formation because of this.

Fathers are special human beings. Some would even say they aren’t human beings at all, but super heroes. But undoubtedly, a father is someone your child looks up to. Little girls want to find a man like their fathers and little boys want to be the type of man that their father is.

A father is someone who is their kid’s biggest fan. He takes them to their soccer games and cheers them on, or he sits in the front row at their school play so he can get the best shot for the photo album. He supports his children as they get older and offers his help where he can. A father is someone who has all the answers. His children may have never asked the questions, but dad is always the first to offer his solution. He has his opinions on how they should handle things, and this may get frustrating as they grow older, but this is his way of trying to help.

Think about the last time you communicated with someone. The scenario you come up with will undoubtedly be reflective of your definition of the idea of communication. Overall, there is a societal tendency to ascribe a higher value to verbal communication over non-verbal communication. For example, I assume that the above question most likely directed your thought stream to the last conversation you had. If verbal (and thereby written) communication is the means by which humans share and receive information, then language becomes the most important facilitator of this process.

However, I feel that thinking of language as the only way to communicate is problematic – it is too narrow of a lens. Ask the parents of an autistic child, who have learned, after several frustrating hours, to find meaning their child’s slightest shrug, frown. According to a blogger, and mother to an autistic daughter “every single thing we do communicates something”. Especially for parents like her, learning to reposition this idea of communication provides for a way in which to feel closer, more connected to their children who struggle with ‘mainstream’ verbal communication. Gestures, pictures, expressions, vocal utterances are a few examples of the ways in which communication can operate on levels independent of speech and language. It is important, here, to acknowledge the interconnectedness of these communication channels. That is, we have noticed that developing one or few of these dramatically increases the development of other channels as well. For example, for a child we worked with, her parents noted that using an AAC aid substantially increased the number of gestures she used as well.

This is not to discredit verbal communication: in many ways, language forms a more objective platform that people can interpret with more uniformity than non-verbal communication; it is associated with intent and ability. Perhaps it is in finding each child’s unique way of relating non-verbal and verbal communication with each other, it will be possible to develop both channels simultaneously.

Dear Mom,

We often wonder how you do it all. How you can stay up all those nights, just so your child can sleep better. How you cook the most delicious meals, yet are content with the burnt ends of toasts. How, your joy in your child’s progress is often tinged with lost dreams and small worries. How, no matter how many temper tantrums and meltdowns you deal with, it makes no difference to you.

A part time counsellor, a full time friend, sometimes a teacher. Planner and organizer par excellence. Chef extraordinaire. Caregiver, coach and comrade rolled into one. And all of this powered by a heart of pure gold.

A mother’s love is something that can never be replicated no matter how strong the support system around a child is – a love that is unconditional and perpetual, absolute and profound. And today being Mother’s day, we would like to honour this special bond.

As we continue the transition from The Flintstones into The Jetsons age of technology, the process of selecting the perfect AAC app can be exasperating and overwhelming, due to the massive selection in the app store. At the present time, there are over 300 AAC apps in the store, each with subtle differences, but all targeting the augmentation of communication. Our goal as professionals and caregivers is to find the AAC app that is most appropriate for the child and meets their individual needs. Avaz has done what the iPad has done for all learners, modernizing the way children with special needs learn and communicate. As a Speech Pathologist and Assistive Technology Specialist, the most common question that I receive relates to what I feel is the best AAC app on the market to support our nonverbal students. Without hesitation, I quickly refer them to Avaz, as I truly feel that this AAC app is one of a kind.

We know that there are a number of communication apps that let you create multiple communication pages and link them together, but most of them have a steep learning curve and takes a lot of time and training to use effectively. Avaz is extremely user-friendly, allowing the user to create their own custom buttons and communication pages in seconds. The user is in control of how the language is arranged, and with pre-designed communication pages, creating a solid language foundation can be quick and easy. Jane Farrall, an expert in the world of AAC, rates Avaz with 3/3 stars, and the iTunes store has a user-rating of 5 stars, which is a difficult feat to accomplish these days. If you want to simplify your life in the AAC world, give Avaz a try, as I can honestly say that it has made a world of difference in the lives of the students I work with and in my professional life as well.

By
Chris Wenger, M.Ed., M.S., CCC-SLP
Speech & Language Pathologist

Children have been using Avaz extensively till now, and it is an extremely successful AAC intervention for children with autism. Although Avaz allows for extensive literacy development in children with autism, there were still a few situations that were not addressed by this app. Namely, children with speech and developmental conditions using the app were found to struggle with word orderings and abstraction. So it is simple to identify and learn a word that denotes ‘eat’ but when it becomes ‘I want to eat’ – it becomes problematic – for how do you visually represent ‘to’? Additionally, children struggle with understanding word order, and how different sequences of words have different meanings.

A need to address these issues is what gave birth to the idea of Avaz FreeSpeech. FreeSpeech is a way of representing ideas visually, and a way of converting the representation into perfectly grammatical, meaningful English (or any other language). Instead of stringing words together as sentences, you can use Avaz FreeSpeech to create maps of images, to represent ideas in a completely language-independent way.

It’s finally our most favourite time of year! Christmas is all about love, family and memories. People are nicer to one another. More people smile.There’s a magic in the air. And to make the moments you share with your child extra special, we recommend that you use the Christmas vocabulary sets in your Avaz app. (Navigate to : Advanced→my topics→special days and events→Christmas)

Children with autism have a tough time adapting what they’ve learned in one physical environment (e.g., the therapist’s office or school) to others, including the home. Creating consistency in the child’s environment is the best way to reinforce learning. One important way is to find out what the child’s therapists are doing and continue their strategies and tactics at home. It is vital to transfer learning from one environment to another, through consistency and practise. This helps your child feel more secure, because it creates a consistent and predictable environment.

We have heard some nice stories about therapists using Avaz innovatively to promote consistency. One way is to share backups of Avaz content on Dropbox (http://www.youtube.com/watch?v=Hl1HnTavZhE&feature=player_embedded). A child using the Avaz app on different iPads at home and school can use the same vocabulary by syncing both iPads to the same Dropbox account. This not only synchronizes the content, but also saves content from being deleted or lost accidentally.

Thanksgiving is a time to simply say, Thank you. It is a time to take a moment, stop and think about all the wonderful blessings in our life and be grateful for our family and friends. And to make this season a little more special for you and your family, we’re offering you a 25% discount on Avaz. Do avail of this offer by making a purchase between 28th November and 2nd December 2013.

Please do spread the Avaz Thanksgiving cheer around you! We’d appreciate it if you talked about the discount with your family and friends (email, tweet, facebook) or those who might need Avaz.

An Assistive Technology (AT) Library offers families and therapists the opportunity to preview or trial assistive technology devices for children and young adults. Thus, families of children with special needs can go to an AT library, have a look and trial the different AT devices the library has to offer. They can subsequently borrow a device/app for a period of few weeks. This way they can preview a host of AT devices and based on the child’s compatibility with it, buy it for the child. (For example, check out one of Wisconsin’s AT libraries: http://www.atlclibrary.org/).

Many of Avaz’s resource centers (https://www.avazapp.com/avaz-resource-centers/) are AT Lending libraries, where people can borrow an iPad with apps in it, and a parent/therapist can try out Avaz (or other apps) with their child before deciding on it. Since, these lending libraries offer a time based trial of the app, it’s critical that the speech therapists or parents have some evidence to decide if the app has worked for their child or not.

Sensory processing refers to our ability to take in information through our senses (touch, movement, smell, taste, vision and hearing), organise and interpret that information and make a meaningful response. For most people, this process is automatic.

Children who have a Sensory Processing Disorder (SPD), however, don’t experience such interactions in the same way. SPD affects the way their brains interpret the information that comes in; it also affects how they respond to that information with emotional, motor and other reactions.

Babies and toddlers learn about the new world around them by using their senses. At first they put everything in their mouths, they grab your finger with their little fists, then they start using their eyes to look at all those baby mobiles hanging over the crib. They learn to recognise the sound of their mother and father’s voices and other noises. They start putting meaning to what they are hearing and seeing. The lesser known senses that have to do with balance and body position are also necessary in order to making meaning of the world around. If these are not working properly and are not in synch, they acquire a distorted view of the world around them and also of themselves.

Although a sensory processing disorder is not considered a qualifying characteristic for a diagnosis of autism, most people with autism have stated sensory processing challenges as the number one difficulty for them, regardless of where they are on the spectrum. So, many people on the autism spectrum have difficulty managing their sensory inputs. They may over- or under-react to visual, tactile and aural input – sometimes to the point where they are unable to participate in typical life activities. Information is processed by the brain in an unusual way that causes distress, discomfort and confusion.

In my last post, I spoke about how some kids with special needs are better at motor planning than picture identification. In a nutshell, kids who tend towards motor planning can ‘remember’ a movement sequence that leads to selecting a word, and learn to associate that movement sequence with the word. It’s another way of building and using vocabulary.

We build Avaz so that it could be used by nearly all kids with complex communication needs, and so we built in a number of features to support motor planners, too. Here are some tips about how you can set up Avaz for maximum efficacy if you think the child you are working with is stronger at motor planning than picture identification:

The settings for motor planners are grouped under “Picture settings (Behavior)” in Avaz.

Thank you all for participating in our Fourth of July – Independence Day contest. We were overwhelmed with the response!

A $50 iTunes gift card is on its way to Toby & McKade, who sent in this winning entry of McKade using Avaz to tell his parents what he would like to do each day. Toby also wrote a few lines to tell us he loves Avaz and how it has helped everyday interactions for him and his wife with their children.

“Thank you. Avaz is our preferred AAC app. I have been so grateful to have found it. I love that there are different levels to use in the app. Thank you for what you all do for families like mine.”

McKade, age 9, uses Avaz to tell us what he wants to do each day!

It is widely known that children with developmental or language disabilities like autism have difficulties with identifying words from their sound or spelling. They need a different way of identifying words and using them to build their language and communication skills.

In an interesting conversation with an Augmentative and Alternative Communication (AAC) expert we discussed two approaches that have worked well to build communication in the context of these disabilities: Picture Identification and Motor Planning.

Picture Identification

Independence Day is the celebration of an idea : An idea that all of us deserve to be free; that we have the freedom and rights to make choices and communicate those as best as we can.

We are conducting an Independence Day contest this week and next (till July 14th, 2013) as this gives us a chance to thank our Avaz community for being part of our endeavor to help every child’s voice heard. Our last blog post on Independence Day Vocabulary set very easily enables your child to enjoy using Avaz this 4th of July.

Contest Details:

Stand the chance of winning a $50 Gift card at the iTunes Store (Terms & Conditions Apply)! To participate and win the Gift card its just one simple step:

Mail us a photo of your child using the Avaz app and tell us how you used Avaz on Independence Day! Whether it was spending the long weekend with friends and family, seeing the Independence day parade, going on a long drive or dressing patriotically – there’s no fun activity that communication can’t make even more fun.

Independence day – 4th of July is a day for Five Fs – Fun, Food, Family , Friends and Fireworks – and a time for celebration and enjoyment for everyone. There is so much to see all around and so many new experiences which your little wonder might get a chance to explore and learn from.

To help your child express himself on this occasion and to enable you to prepare him for what’s coming up, we have created a special vocabulary set for Avaz users, for 4th of July. Whether it is expressing amazement at the sight of the American Flag, or happiness on watching the fireworks, or just conveying that he is tired and wants to go home – there are numerous thoughts that flash across his mind, waiting to be expressed. But not getting the right words cause disappointment to the child and might decrease his intent to communicate. The child’s joy at his ability to express exactly what he wants to say with the least effort, is what drives our team forward to create these little sets of vocabulary for you. So, with Avaz Version 2.1 we offer you the opportunity to download and add these tailor-made vocabulary sets to your Avaz content, which enable your child to express himself more accurately, for every special occasion.

We’re launching Avaz 2.1 today. We are very excited about the new feature that we are introducing in this version. We think it’s a big game-changer!

Every time we meet and talk to educators, therapists and parents, we hear the same complaints — too much work, too little time. We’ve kept raising the bar on how user-friendly Avaz is, and we’ve tried very hard to make it the easiest AAC app to use.

Version 2.0, which we launched only a couple of months back, had several great features that received awesome reviews all-round. But today, we’re going one step further – from enhancing the app’s features to helping you create content on it. Avaz 2.1 allows you to download and incorporate new words and vocabulary into your copy of the app, and we promise to keep creating interesting, research-based vocabulary, that you can use right off-the-bat.
(e.g. a birthday party vocabulary set)

One of the most insightful things I ever heard anyone say about AAC was the magnificent Ian Bean’s talk in 2012. His talk was called “The Killer App” — and his point was that the most important thing, which decides whether AAC works or doesn’t work, is not the app – it’s the way it is used; it’s not the technology, it’s the parent or therapist; it’s not the features, of the app, it’s the strategy of the caregiver.

People often ask me what’s the best way to choose an iPad AAC app, and (when I take off my Avaz evangelist hat) I tell them, choose the app that you think that you, as a caregiver, would feel most empowered with. When you see an app, do you feel intimidated by it? Or do you get that tingly feeling of possibility, as ideas crowd around in your head about how you can use this shiny new tool in your arsenal to build communication skills in new, fun ways? Always choose an app in the second category. It doesn’t matter what the price is, or how famous it is, or how pretty the graphics are – what matters is how easy it is to incorporate in your strategy, and how comfortable you feel with it.

While interacting in conferences, support groups and online forums, we’re more likely to run into moms rather than dads (Autism Daddy is a notable exception) – but this Father’s Day is a good time to thank all those awesome, amazing dads out there – for the incredible things they do for their kids, and for the amazing support they provide for moms.

As SLPs and speech-language techs, we are sometimes guilty of looking too deeply on the ‘how’ and the ‘how much’ of communication, and too little on the ‘why’ and the ‘who’. Nearly every heart-warming story we’ve heard about Avaz and AAC usage is a beautiful interaction that happens between a parent and a kid. Whether it’s a kid expressing a food preference for the very first time to their parent, or seeing the awesomeness of the big smile of a kid who’s just got something they love by asking for it with AAC, or just sharing an emotion or a feeling.

1. Track your therapy sessions

Therapists suggested that they would love to have the app track their therapy sessions automatically in the background. This would save them time from taking notes during or after therapy, and allows them to concentrate on their therapy instead. In this version, you can automatically track the users’ activities during a therapy session, by using the Track Session option under Settings. When you end the session, you get an option to email the session log. The session log maintains a log of all sentences spoken out, changes made to settings, and changes made to the vocabulary (add or edit).

2. Backup & Restore

Therapists voiced their concern that after customizing the vocabulary in a particular device, they were unable to backup the content, and would lose the content if they change the device. We now offer the option to backup the existing Avaz data onto your iPad using Create new backup from the Backup & Restore menu in Settings. To restore backed up content, select from the list of backups displayed. This restores the state of the app at the time of backup. The backups can be deleted by connecting to iTunes.

3. Use Dropbox to synchronize your Avaz content over multiple iPads

With this version it is really simple to synchronize your Avaz content over multiple devices. You can do this by linking your Dropbox account in Avaz. Use the Link to Dropbox option (under Settings -> Backup & Restore) to sign-in to Dropbox and then create backups of your Avaz content. Use the same Dropbox account on the other iPads to synchronize the content.

4. Share messages

Avaz now empowers the user to communicate with family and friends through the social media. An Avaz user can share messages (that Avaz speaks) through Facebook, Twitter or Email. Set the medium of communication using Share on Social media option in Settings. You can share the message after you speak it out from the message box. A child can say “hello” to his friends through email or wish “Happy birthday” to his grandmother on Facebook!

5. Color coded vocabulary

The vocabulary is now color-coded (optional) and grouped linguistically, to facilitate language development. You can also individually change the colors of any of the images using the Edit image option.

6. Enhanced vocabulary

Parents and therapists were keen to have vocabulary that serves a wider range of children, and offers increased opportunities for communication. The Avaz vocabulary has now been enhanced by an additional 2000+ words. You can choose from more than 80 topics of conversation under My Topics – e.g. “Go shopping”, “Play basketball”, “Pet care” etc. Each of these categories contains the relevant context words, supported by appropriate core words to facilitate sentence formation. These topics are grouped under the relevant settings or environment where they are likely to be used – e.g. At home, Outdoor etc.

7. Add your own voice to messages

Some parents and therapists wished to personalize the spoken messages by recording their own voice. You can now add your voice to the message using the Record button when you edit the message. This is also useful for correcting mis-pronounced words or words having different audio messages.

We just released a minor update of Avaz into the App store.

Here are the major features
* Backup functionality has been added through iTunes. You can now back up your vocabulary and transfer it between iPads if you want to.
* Restoring the default vocabulary is faster
* A few minor bug-fixes

The backup functionality was something that many people asked for. While we’re working on a new backup mechanism for v1.2, this one has the basics covered.

It is certainly a pleasure to know what our customers feel about us! I was completely overwhelmed when I went through the articles written by Mukund, a student of SPASTN. Read on to know more about Mukund and how Avaz has transformed his life. Thanks to Ms. Jyothi, speech therapist of Mukund and Mrs. Jayashree, the Director of SPASTN. The article below was typed out on Avaz by Mukund and his teacher has written it down.

We love to hear stories of Avaz users generalizing AAC beyond the classroom, and that’s why we found the story of Gopinath in the library so much fun.
Gopinath is 11 years old, with CP, and he’d been using Avaz for a few months when his therapist decided to take him (and Avaz) out of the classroom and into the big world outside. There’s a large public library only a few blocks from his school, and Gopinath was only too glad for the opportunity to skip out and go there.

It was a lot of fun for Gopinath and his therapist to pick a book to read in the Children’s section. The shelves in the Children’s section are low and really well-designed, and Gopinath, on his wheelchair, could browse all of the books without too much assistance. He ended up choosing a colourfully illustrated book about a tiger cub and a little boy, and used Avaz to request his therapist to take out the book for them to read together.

The #1 comment we hear from reviewers of Avaz is how easy it is to use! Some people think that products that are easy to use are also easy to build. If only this were true. It’s easy to build complicated AAC systems – just put in everything including the kitchen sink, build the code, and release into the app store. To make something simple is rather more work.

With Avaz, we went through many iterations before we could get something that was ‘simple enough’. The first generation of Avaz couldn’t be customized from the device – you had to customize it on the PC, and then load it in. The next version was better, but still cumbersome – to add a new word, you would type it in the keyboard mode, and save it as a picture for it to show up in the picture mode. It seems the most intuitive idea now to make every screen of Avaz editable with a single click on the Edit pencil – as it is today – but it took many iterations to get to that point!

Augmentative and alternative communication (AAC) is the name given to devices and apps that can help non-verbal children with cerebral, autism, mental retardation, Downs syndrome and other disabilities to communicate. While developing and demonstrating Avaz, I’ve heard parents express numerous misconceptions about AAC. A child with special needs isn’t empowered to make his or her own choices about AAC, which is why a parent’s misconceptions are doubly dangerous.
Here are some of the most popular ‘myths’ I’ve heard:

1. My child can talk – if she uses an AAC aid, she will not feel motivated to develop natural speech.
This is the most dangerous myth of all. Some non-verbal autistic children go on to become verbal and some do not. Withholding communication and trying to insist on natural speech prevents a child from experiencing a normal childhood, with new experiences, expressing curiosity, and making friends. Even for those children who do become verbal eventually, research has shown that using an AAC aid actually assists the process, instead of inhibiting it.

2. My child is too young to get started with AAC.

This is related to the ‘can talk’ myth. Thirty years of AAC use have demonstrated very clearly that early intervention is key to managing autism and other disabilities effectively. The brain is very plastic before the age of 6 – new neurons are created, and new connections are formed between different parts of the brain. Picture-based AAC aids for autism work by bypassing the brain’s verbal center and instead using the visual center or language-planning center for developing language. The earlier the intervention, the greater the likelihood of success. I’ve seen stellar successes in AAC intervention with kids as young as 2.

In the dimly lit Audiology room, 10-year-old Babu emanates energy and good cheer. Accompanied by his mother, he seems excited about his Avaz communication therapy session with his teacher Ms. Radhamani. Babu has cerebral palsy and is quadriplegic.  This doesn’t stop him from having fun with the people around him.

Before sitting in on his session; a struggle between him, the teacher, and Avaz was anticipated. However, the reality was far from what was envisioned. In the next forty-five minutes that was spent with Babu, many wonderfully lighthearted moments were shared. He joked with his mother and giggled. And saw his mother’s beaming pride as he navigated the device to speak his mind. 

Of the many instances that were spent with Babu, one stood out in particular because it was – for lack of a better way of putting it – super cute.

His teacher asked him about his favorite foods. Babu quickly navigated the screens with his little finger, scrolling up and down searching for his choice. Then looking up at his mother, his face broke into a naughty smile. Biryani (Indian spiced rice), he tapped. Biryani, biryani, biryani, he persisted laughing all the while. Soon, everyone joined in and his mother happily said to Ms. Radhamani “Yes, he really does love biryani”. Using Avaz, Babu was also able to tell his teacher what he wanted to eat for lunch, and his mother was more than happy to comply.

Another instance was when Ms. Radhamani asked him about his family. With almost no hesitation, he tapped on ‘brother’, to the delight of his mom. “He really loves his brother”, she said proudly. But Ms. Radhamani wanted to go further. She wanted him to name the members of his family in order of age. With a little encouragement, he was soon able to tap on Father, Mother, and Brother in that order.

Babu’s success with Avaz is a testimonial to the device’s potential to help a child communicate. Babu has only used Avaz for two weeks (yes, ONLY two weeks!), and he has already advanced from picture mode to text mode.

A combination of his lessons, individual and group Avaz sessions, and a consistent use of AAC at home – has enabled Babu to make great progress. He has developed his sight reading skills and is now able to better communicate his thoughts and preferences. At the end of the session, he ended by tapping on Thank You. The emotions and pride felt by Babu’s mother were very evident.

From this interaction, we were able to observe what seemed to work for Babu and what didn’t. We were able to put together some tips to facilitate effective engagement with any AAC device or app.

• Individual attention is the best kind, but group sessions help build social interaction skills.
• Being consistent with the AAC normalizes the device to the child, so they’re able to acclimate to it faster.
• Give the child as long as they need to ‘discover’ the device. Do not be impatient, and do not immediately prompt.
• Set short term and long term goals for the child’s progress using the AAC device.
• Do not get comfortable. If you see that the child has mastered the picture mode, for example, challenge them by gradually shifting to text. Challenges keep kids motivated, especially when they’re able to overcome them!

Most importantly, keep providing positive reinforcement to help the child stay motivated to use the device.

Inspired by a recent post by Speech-Language and AAC specialist, Dr. Carole Zangari, we’re bringing to you the basics of contingency mapping and its merits in decreasing behavioral problems in autistic children. We think this strategy shows immense potential in creating and sustaining an environment where lesser time is spent on tending to behavioral issues, allowing for more time and energy to be devoted to learning AAC use.

What is Contingency Mapping:

Contingency mapping, developed by Dr. Brown and Dr. Mirenda is the process whereby pictorial representations of antecedent – behavior – consequence pathways are created. The map shows divergent pathways depicting consequences of desired behavior (or alternative behavior) as well as undesired behavior (or problem behavior) from the learner. It contains the following components:
– the common antecedent that occurs before the problem behavior (and alternative behavior)
– the topography of the problem behavior and alternative behavior
– the functional reinforcement that will be provided if the learner avoids the problem behavior
– the absence of this reinforcement that will not be provided if the learner continues the problem behavior. (Brown,

In using AAC devices, I’ve noticed that parents tend to envision the device as an automatic solution to their child’s communication needs. Parents anticipate that the child will take to the device right away with somewhat of a sustained interest, and express disillusion with it when he/she doesn’t use it the way they expected. Some parents report their children touching the wrong keys, responding incorrectly and getting distracted. Disheartened by the lack of immediate results, parents spend decreasing amounts of time helping their child with the AAC.In India, where the credibility of AACs and its success is still little known, there is a skepticism towards using technology, which in turn impacts how much the child is actually exposed to the device. If the child doesn’t respond quickly to the device, parents stop encouraging him/her to use it: it becomes easy to blame the technology, to claim that it isn’t a good fit for them.

India is indeed a paradox. Those of us in India are aware of the extremes that we find ourselves in the middle of, yet sometimes the disconnect between the two polar ends takes becomes more real, more unsettling than ever. Recently, I found myself in such a position of disillusionment. It came in the newspaper one morning, when I read about a mother in Tamil Nadu, India seeking euthanasia for her 14 year old daughter – Madhumita – who suffers from cerebral palsy. The mother – Jaya’s – disheartening appeal was the result of her being unable to access adequate care services for her daughter. In the words of Ms. Jaya, “She cannot walk or speak. She cannot even identify us. She sits all the time in her wheelchair or lies on her bed. The only thing she does is cry. I am taking care of her with great difficulty and I am worried about her future”. The family whose income was insufficient to cater to their daughter’s medical expenses said that the homes for rehabilitation were unwilling to accept Madhumita, driving them to seek this drastic measure.

This is particularly unsettling because my work with Avaz has exposed me to the expanse of individuals and companies that are coming up with new technology and solutions to the very problems of communication and mobility that Jaya talks about. Even within India, there is no dearth of such technology – it is just overwhelming problem of connecting these resources with the people like Madhumita that most need it. Is it a lack of awareness, funding, governmental intervention or an amalgamation of all of this? In any case, it was shocking to me, as I work alongside individuals who envision better futures for children like Madhumita, that there are still many who are being left behind – that structural problems of society cause families to make such extreme decisions in evident desparation. Can this change?

I walk into Chyrsalis – a small school for autistic children in Neelankarai, Chennai- and I’m greeted by smiles. In a courtyard shaded by trees, children interact with their teachers, tossing a ball back and forth to each other. It is oddly serene, and I am immediately put at ease. Inside, I meet the director of the school Ms. Rekha, and Ms. Viviani – a special educator, who have graciously agreed to share their experiences with Avaz – their stories – with me.

“We feel like we’ve become better people”

Due to our extensive reliance on language to express and understand emotions, sometimes an autistic child’s feelings go unnoticed, or are misinterpreted. Several high-functioning autistic adults have elucidated that as children, they often had instances where they felt intense emotions (such as those of anger or fear) but had trouble expressing those feelings coherently. Here, AAC devices help facilitate this very expression, by giving a voice to previously unspoken feelings. Rekha and Viviani recount the instance where a young student was in distress, crying incessantly. It was by using AVAZ that she was able to relay to her instructors that she wanted to see her mother, who had passed away. Needless to say, both Rekha and Viviani were overwhelmed by the extent to which the little girl was able to express her emotions when given the right tools. According to Rekha, AVAZ has helped the faculty of Chrysalis be better listeners and establish deeper connections with the students.

“Don’t leave me alone”

A 5 year old at Chrysalis was gearing for his transfer to a mainstream school about a year ago, and as a part of this process, he was required to attend an assessment session at his new school. Upon his return, his teachers were eager to hear about how it went. Using AVAZ, they asked him questions about his experience. Pushing the device away, he burst into tears, then taking back the device, he used it to say “Don’t leave me alone”. Later, AVAZ helped him communicate to his teachers his fears about transferring to the new school – he thought his teachers were pushing him away and leaving him. Understanding this, the teachers were able to pacify him, tell him that he would never be alone, and explain to him how much fun he was going to have at his new school.

Great reviews

The ease of navigability and extensive customization options are features that make AVAZ most appealing to the students at Chrysalis. The predictability of the software, coupled with the appeal of the touch screen make communication a hands-on, enjoyable activity geared to the multi-sensory needs of an autistic child. Rekha notes that the intent to communicate has grown, and more children are taking the initiative to communicate. Rekha and Viviani have only good things to say, and in the year that it has been in use, Avaz seems to have brought about many wonderful improvements. I leave as I came, with a smile on my face.

Visiting Akshaya Prathishtan, I knew that the wheels of change had been set in motion. There was none of the initial resistance and skepticism about using Avaz, only progress and communication. The kids have only been using the device for a month and a half, yet the developments have been incredibly encouraging. Interestingly, most of the children are hearing impaired, and therefore the the effectiveness of a voice output device was suspect. Yet even in the short time span, not only has communication increased, but simultaneously so has the will to do so.

We had a meeting with around 10 children (current users and potential users) along with their parents. One child, Jyothi, who has never spoken at all save a couple of words in all her 14 years is suddenly attempting to speak. Although the words are not comprehensible, she is making a very strong attempt at trying to speak. Her mother who had also come there was extremely happy with her progress and was very happy to share her experience with all others there.

This is a very heartening response to the those who believe that a voice output device would impede speech development – on the contrary it has resulted in speech development within barely a month of usage! Most moving was hearing her parents express their heartfelt happiness and excitement about their child’s improved speech.

Other children also tried it for the first time that day. They were able to quickly understand the text mode and even started using it to type their names, parents’ names etc. One of them even used the clear button to clear the message box after using it ! He was so keen to use it that he refused to give it to the next in the queue !

It is moments like these that stay with us, and show us that with a little help, encouragement and an open mind, anything is possible.